Resultados de la búsqueda de: roselty y su novia

Cabaletta Bio Announces Promising Results for CAR-T in Myositis

On October 26, at the world’s largest gathering of rheumatologists, the American College of Rheumatology, Cabaletta Bio unveiled positive new results that could mark a...

El ensayo de Abatacept concluye con resultados favorables en el tratamiento de la JM

A clinical trial treating patients with juvenile myositis with the drug abatacept resulted in lower disease activity and clinically significant responses in most patients. The...

Ayuntamiento Octubre 2024, Calcinosis, Christian Lood

Dr. Christian Lood is a professor and researcher who studies autoimmune diseases, focusing on a condition called juvenile myositis (JDM) that affects kids’ muscles and...

GCOM 2024, actualización del Director Ejecutivo
Recientemente, Jim Minow de Cure JM pudo asistir a la Conferencia Mundial sobre Miositis. Esta conferencia no solo fue informativa, sino que fue un...
Los padres investigan con los médicos
Cure JM is dedicated to finding a cure and better treatments for juvenile myositis (JM) and improving the lives of families affected by JM....
Información actualizada de Jim Minow

Actualizaciones de Jim Minow Jim Minow aporta a la Fundación Cure JM más de 30 años de experiencia sin ánimo de lucro en gestión ejecutiva y recaudación de fondos. Fue...

Médico con padre y paciente con miositis juvenil.
A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms...
Se presentan los primeros datos prometedores de Car-T para la miositis
We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM). What we heard...
Actualización del Director Ejecutivo - Resumen de la Conferencia de Jim
Cure JM held its first post-COVID Family Conference earlier this summer. The conference was an extraordinary experience for families and leaders on so many levels,...
Cure JM’s Community Advisory Board plays a vital role in representing JM families from diverse backgrounds to help support this cutting edge research project. Cure...
2024 Year in Review GIF, Cure JM

2024 has been a momentous year for life-improving progress in research, clinical care, and empowering support and education. We invite you to join us in...

Actualización de la Iniciativa Chan Zuckerberg. Los investigadores asociados a Cure JM logran tres importantes avances
Last year, Cure JM and a team of collaborative researchers received a prestigious $2 million grant from the Chan Zuckerberg Initiative to advance our understanding...
Natalia, paciente de dermatomiositis juvenil, con el Dr. Liebling, investigador de la DMJ
Help researchers find the cause and a cure for juvenile myositis by volunteering for these important studies....

En primer lugar, algunos términos que hay que conocer cuando se habla de autoanticuerpos específicos de la miositis. ¿Por qué hablamos de autoanticuerpos específicos de la miositis? Sabemos que la DMJ...

Each January, I share with our community a few personal New Year’s resolutions for the year ahead. I believe these resolutions help us keep a...
Austin Krainz, diagnosed with juvenile dermatomyositis at the age of seven, overcame the challenges of a rare disease with the support of his family and...
Cure JM is dedicated to finding a cure and better treatments for juvenile myositis (JM) and improving the lives of families affected by JM....
Una familia sostiene un cartel de Cure JM en una playa
Cure JM was founded 19 years ago by a small group of volunteers who wanted to change the world for children with a rare disease...
Estudios de investigación publicados y resúmenes financiados por Cure JM
There are a number of published studies about juvenile myositis. Browse this list of over 100 published research studies and abstracts....
Dr. Joanna Parkes

Backed by funding from the Cure JM Foundation, scientists at the UK’s Nucleic Acid Therapy Accelerator (NATA) are creating tiny medicines that press the “quiet”...

El investigador comenta el gráfico de la pared.
Research is vital to finding better treatments and a cure for juvenile myositis. Cure JM funds research studies through our Cure JM Centers of Excellence...
In January, the Cure JM Clinical Care Network was pleased to invite juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations from...
Rebecca Karsten, Por qué recaudo fondos, Ellory, Giving Tuesday 2024

Rebecca Karsten– “Hello! Welcome to a wonderful community that even though we never wanted to join; we are now so happy to be part of....

La historia de esperanza de Emma, Giving Tuesday 2024
At 12 years old, Emma's world was turned upside down. An energetic cheerleader who loved spending time with her friends, she suddenly found herself constantly...
Ayuntamiento Octubre 2024, Calcinosis, Christian Lood

At the October 25th Town Hall, Dr. Christian Lood, professor and researcher at the University of Washington and Seattle Children’s Hospital, presented on the topic...

Información sobre salud emocional y mental para médicos
We recommend that mental health assessment and treatment options be an integral part of comprehensive care for children, adolescents, and adults with juvenile myositis....
There are Cure JM Chapters all across the United States offering support and opportunities to gather with other JM families in your area. Join an...
Ejercicio de imagen con Sue Maillard
Juvenile myositis patients and parents of children with JM often ask how important exercise is while on the path to recovery and remission....
Dr. Sadun is a pediatric and adult rheumatologist at Duke University, a Cure JM Center of Excellence. She recently presented at the Global Conference on...
El potencial de JAKS en la lucha contra la JM
In our June 2024 "Ask the Doc" Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are,...
Mayo Simposio Virtual 2024, Clínicos
The Cure JM Clinical Care Network hosted our second quarterly virtual symposium of 2024, "Juvenile Dermatomyositis - Advances in Clinical Care, Basic Research, and Translational...
Parrish Historia de esperanza
We would like to introduce a one-of-a-kind, competitive, and determined young man, named Parrish. His story of resiliency and hope is one that will resonate...
Anna Ramsey has lived with juvenile myositis for most of her adolescent and adult life. Over the years Anna has been actively involved in Cure...
Do you know the warning signs of depression and anxiety? Has your child had a mental/emotional health assessment? Here are some resources for you, your...

Spring break should be about fun and relaxation. Sandi and her husband Zack expected their trip to Mexico would be the same. Of course, taking...

“Giving Tuesday is the biggest day of the year at Cure JM. Your participation means a lot to our success!”....
A task that seemed daunting 20 years ago, to change the world for patients diagnosed with juvenile myositis, is now within our reach....
Atención sanitaria conductual integrada en un centro de excelencia

A recently published study on integrating mental health care into a pediatric rheumatology specialty clinic, supported by the Cure JM Foundation, concluded that the need...

La historia de esperanza de Sari

Sari’s pain began in September of 2018, during gymnastics practice. It started in her shoulder. She didn’t give it much thought. But then it worsened,...

Acerca de la miositis juvenil
Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, are a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its...

Cadence was only 18 months old when she was diagnosed with juvenile dermatomyositis. Her mother took her to their pediatrician’s office multiple times, only for...

FAQ Gráfico

Why is emotional/mental health important to our JM kids? Where can I find out more about mental health issues for our JM kids? Where can...

Niña apoyada en un árbol
Kindergarten is about making friends, learning how to count by two’s, and reading Biscuit books. But for Madi, Kindergarten was not so simple....

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