Search Results for: grandparents

Elinor, A Grandparent's Story of Hope, with grandson and dog

My grandson, Connor, was diagnosed at a very young age. Since he was two years old, he has struggled with rigorous and invasive treatments. From...

Grandparent GEMs

Grandparent GEMS are grandparents who are part of Cure JM’s GEMS monthly giving community. Grandparents have long been the bedrock of support for children and...

Nine Ways Grandparents Can Support there Families
We understand how difficult it is when your grandchild is diagnosed with juvenile myositis. We have compiled these tips from other JM grandparents on how...
Grandparents at JM Family Conference

Grandparents play a vital role in the Cure JM community. Your love, advocacy, generosity, and steadfast presence have helped strengthen families and move progress forward...

The Cure JM Grandparent Alliance is the platform for engagement for all grandparents of patients living with juvenile myositis....
Randy and three other grandmothers at conference

What is the Grandparent Alliance?  We are grandparents of a grandchild living with juvenile myositis.  Our mission as grandparents is to learn about juvenile myositis and support...

Anita and granddaughters at walk 2024

Supporting Cure JM: A Grandparent’s Guide to Making a Difference As grandparents, your love and support are the bedrock of your family’s strength. You provide...

Love Letter to a grandparent

Dear NaNa & PaPa, I appreciate all the love you have given me throughout my life. From the very beginning, you have been my biggest supporters, and...

Love Letter to a Grandparent, series 2

Dear Grandma and Grandpa, I miss you and really wish we lived closer to each other. I love when you send my mommy pictures of...

Grandparent Spotlight- Anita Mottice
Cure JM recently had the pleasure of interviewing a remarkable individual who hails from Canton, Ohio, and brings a wealth of experience and love to...
There are Cure JM Chapters all across the United States offering support and opportunities to gather with other JM families in your area. Join an...
Executive Director Update - Jim's Conference Round Up
Cure JM held its first post-COVID Family Conference earlier this summer. The conference was an extraordinary experience for families and leaders on so many levels,...
Our Family Support Network offers a warm, practical place to meet other parents, grandparents, teens, and young adults who understand the journey....
There are Cure JM Chapters all across the United States offering support and opportunities to gather with other JM families in your area. Join an...
The Cure JM Foundation is a global leader in juvenile myositis (JM) research, medical care, and family support. We are a family of families seeking...
GEMs

Are you a JM Grandparent? Read more and celebrate our Grandparent GEMs here. GEMs is Cure JM’s monthly giving community. The name reflects a simple...

Olivia's Story of Hope, photo of family

Olivia is four years old, and she’s been fighting juvenile myositis for almost two years. At the beginning of her treatment, Olivia’s parents, Leah and...

Why I Walk- Ellen Stream
Ellen Stream’s love for her granddaughter, Brooklyn, fuels her commitment to the juvenile myositis community. When Brooklyn was diagnosed with juvenile dermatomyositis (JDM) at two...
Parent and Teen Mentor Image

Feeling Lost After a Myositis Diagnosis? Find Support with Cure JM Mentors! Cure JM is a strong community – a “Family of Families” – and...

Two Grandmothers' Stories
Two Grandmother's share their story and experience when their granddaughter Emma is diagnosed with JM....
Rebecca Karsten, Why I Fundraise, Ellory, Giving Tuesday 2024

Rebecca Karsten– “Hello! Welcome to a wonderful community that even though we never wanted to join; we are now so happy to be part of....

Cure JM Resources
Cure JM offers a network of support, encouragement, and educational resources to help parents and patients navigate their journey with juvenile myositis....
Join Cure JM Image
Get connected to resources, support, and encouragement. We are a family of families seeking a future when every child is free from juvenile myositis....
Ask the Doc - Sun Protection Tricks and Tips - Sheila Angeles Han and Kalyani Marathe
With summer underway, we are honored to share our latest "Ask the Doc" Town Hall on Sun Protection Tips and Tricks for Summer. In this...
Feb 2026 Town Hall

Our February Town Hall featured a conversation designed for parents, grandparents, and caregivers navigating life with Juvenile Myositis. A small panel of young adults in...

Sign the Proclamation Dear Cure JM Community, I am honored to share that Cure JM has been selected as a nonprofit keynote speaker at the...

Holiday Challenge Committee zoom call screen
We are deeply grateful to our Holiday Challenge Committee. Their leadership, creativity, and commitment make this campaign possible and help advance research, care, and support...
Dear Secretary Kennedy, On behalf of the millions of Americans living with rare diseases and the thousands of families who have signed this letter, we...
The Cure JM National Leadership Council is a group of volunteers that actively fundraise for Cure JM....
Love Letter series

Dear Mom, The past two years have been like none I could have imagined. When CeCe was diagnosed with JDM and her life as a...

Are you eager to make a meaningful impact and connect with a community committed to an important cause? The Cure JM Foundation welcomes passionate volunteers...
GCOM 2024, Executive Director Update
Recently, Cure JM’s Jim Minow was able to attend the Global Conference for Myositis. This conference was not only informational, but was a most impressive...
Cure JM’s Community Advisory Board plays a vital role in representing JM families from diverse backgrounds to help support this cutting edge research project. Cure...
Updates from Jim Minow

Updates from Jim Minow Jim Minow brings more than 30 years of nonprofit experience in executive management and fundraising to Cure JM Foundation. He served...

Executive Director Update - A Season of Gratitude
I am writing to wish you and your family the very best this Holiday Season. This time of year, especially, I am filled with deep...
Affordable and Accessible Treatments for JM
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care...
Meet other Cure JM families at an upcoming educational event, family day, or conference in your area. Come together to learn the latest in JM...

Our first feature sheds light on the Carlson family’s (Grandparents of Emma Weiss) cycling campaign to raise awareness and funds for JM kids like their...

Lemons to Lemonade for Kids Logo

Our Story – Humble Beginnings In 2003, Cure JM co-founders Tom and Shari Hume set up the Foundation’s first-ever DIY fundraiser to seed important new...

Family holding a Cure JM sign on a beach
Cure JM was founded 19 years ago by a small group of volunteers who wanted to change the world for children with a rare disease...
jim message

Dear Families and Friends,  Cure JM was honored to be the only nonprofit invited to serve as a keynote speaker at Rare Disease Day at...

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