National Leadership Council

The Cure JM National Leadership Council is the organization that leads the charge to raise funds and advance Cure JM’s mission in communities across the country.

Watch this video on the National Leadership Council’s accomplishments over the past year and also across our 20-year history.
National Leadership Council at the 2023 Cure JM Conference

The National Leadership Council engaged in a meeting of the minds to plan for 2024

The council is made up of volunteers from around the world who are getting involved to make a future free from juvenile myositis.  Volunteers include families, friends, and members of the community.

The National Leadership Council is made up of 5 committees, each with a different fundraising mission.  Committees include: Walk Strong committee, Giving Tuesday Holiday Challenge committee, Rare Experiences Auction committee, Family Fundraisers committee, and Chapter committee.

The Officers and Steering Committee plans the work of the National Leadership Committee.

The full National Leadership Council meets quarterly, and committees may choose to meet more often. For more information, please contact Shannon Malloy at

National Leadership Council officers

Dave MaherDave Maher
Officer, Chair

Debbie DaumDebbie Daum
Officer, Vice Chair

John CaldwellJohn Caldwell
Officer, Second Vice Chair 

Tiffany CaldwellTiffany Caldwell
Officer, Second Vice Chair

Todd ScheidtTodd Scheidt

Randy PuttRandy Putt
Officer, Grandparent Chair

National Leadership Council Steering Committee

Tayler-Ann Brull
Jessica Doherty
Rebecca Gentler
Joanne Hall
Anh Hwang
Leah and P.J. Kania
Lindsay Llauget
Veronica Montero
Aaron Moody, Ph.D
Jason Phelps
Alyssa Quintero
Ashley Renfrow
Luke and Liz Ryan
Mark and Norah Sangid
Todd Scheidt
Damon Smedley
Shannon Taylor
Rebecca Vidra

DIY Fundraising Committee

Committee Chair

        Luke Ryan       

Ryan King
Damon Smedley

Chapters and Walks Committee​

Danielle Britten
Steph Brown
Carey Brudis
Trisha Buescher
Sue Carpenter
Maggie Choy
Eleanor and Brian Clements
Doreen Coffey
Kevin Coffey
Justin and Kristy Cook
Rebecca Cox
Kelly Culver
Emily Darnell
Camille Deal
Mary Ann Eisenreich
Melissa and David Eisenreich
Kelly Florido
Joy Garcia
Kelly Kapp
Naomi Gonzalez
Kim Gorman
Adam Gorman
Erin Hicks
Holly Howe
Jeff and Jessica Jennings
Sasha Kloos
Jessica Kovacs-Cicchino
Meghan Lawner
Giovanni and Stefanina Loria
Sarah McClintock
Lynn Neuenswander
Nick and Lori Parker
Brandynn Phelps
Stacy Povlish
Laura Quigley-Wysocki
Rob Ramsey
Lisa Reilly
Caesy Sauder
Tommy and Mariana Schreiner
Carol Schwartz
Jason Stafford
Scott Taylor
Rachelle Veenstra
Suzie Wallace

Giving Tuesday Holiday Challenge Committee​

Committee Co-Chairs

Lean and P.J. Kania
Becca and Jim Tighe


Bobbie and Matt Bernhardt
Carrie and Rick Bernhardt, MD
Amy and Jeff Blitz
Cristal Brinker
Suzy Clement
Christy Coss, MD
Erin Curtis
Elinor Dahil
John Daum
Katie Dean
Veronica Douglas
Candy Fortier
Darrin Gengler
Julie Glob
Linda Hiatt
Christina and Michael Hunstad
Rebecca and Brian Karsten
Brian Karsten
Bitsy Kasselberg
Mike and Andrea Kenawell
Talita Kipler
Austin Krainz
Kathy Maher
Colleen Marchetta
Meaghan McGregor
Rachel Newman, MD
Mark and Annie Nielson
Mike and Erin Parnell
Dee Dee and Ron Perel
Randy and Jenny Putt
Alyssa and Koti Quintero
Joel and Laurel Reed
Peter Reichard
Anahi Renteria
Kirsten Rice
Kristine Smith
David and Allison Taylor
Kristen Thurow
Bryan and Laura Waisnor
Kirsten Warr
Ashley and Matt Whitt, MD
Glen Westrom

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.