Educational Family Events

Cure JM’s mission is built on community. Much of this community is organized at the regional level through chapter events. We’re excited to connect families with JM experts through our upcoming educational events, family days, and regional conferences.

We believe that our progress starts at the local level through these foundational events.

Meet other Cure JM families at an upcoming educational event, family day, or conference in your area. Come together to learn the latest in JM information and meet others who share similar journeys and experiences.

Family members at Cure JM Local Event

Seattle, Washington

Cure JM Family Day - Seattle

Saturday, April 20, 2024, Noon - 3:00 p.m.

Cure JM’s Clinical Care Network is excited to invite you to join other Cure JM families at our Seattle Family Day. Join other families and these esteemed doctors for a fun and informative event: From Seattle Children’s Hospital: Susan Shenoi, MBBS, MS, RhMSUS, Aviya Lanis, MD, Chris Wong, DPT, SCS, CSCS and Alex Carpenter, PT, DPT from the University of Washington: Christian Lood, Ph.D. at Seattle Children’s Sand Point Learning Center, Seattle, WA.

There will be separate fun and supervised activities for kids as well as a teen’s room while parents, grandparents, and other adult family members are in session with the doctors. There will be time to connect with both the doctors and other families and a social event following for those who can stay.

Advocates Council at Cure JM Conference

Durham, North Carolina

Cure JM Family Day - Duke

Saturday, April 27, 2024, 11:00 a.m. - 3:00 p.m.

Cure JM’s Clinical Care Network is excited to invite you to Cure JM Family Day at Duke. Join other Cure JM families for a fun and informative event with doctors from our Cure JM Clinical Care Network and Center of Excellence.

There will be separate fun and supervised activities for kids as well as a teen’s room while parents, grandparents, and other adult family members are in session with the doctors. There will be time to connect with both the doctors and other families, and a social event will follow for those who can stay.

More to come.

Pittsburgh, Pennsylvania

Cure JM Family Day - Pittsburgh

Saturday, October 19, 2024
Cure JM’s Clinical Care Network is excited to invite you to Cure JM Family Day in Pittsburgh.  Join other JM families for a fun and informative event with doctors from our Cure JM Clinical Care Network. There will be separate fun and supervised activities for kids as well as a teen’s room while parents, grandparents, and other adult family members are in educational sessions with the doctors. There will be time to connect with both the doctors and other families and a social event to close out the day.
 

More to come.

2025 Cure JM Family Conference

Chicago, Illinois

2025 National Family Conference

Friday, June 27, 2025 - Sunday, June 29, 2025

Cure JM is excited to invite you to join other Cure JM families at the 2025 National Family Conference in two years! There will be many different opportunities for parents, grandparents, teens, and children to meet each other and doctors from across our Cure JM Clinical Care Network and Medical Advisory Board. The doctors will share updates on the best treatment options, new research studies, and useful tips for your child’s care.  Save the date!

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