Regional & Virtual Events
Meet other Cure JM families at an upcoming event in your area.
Virtual Event- Brought to you by the Cure JM Clinical Care Network
December Town Hall
How are lab outcomes measured? What do labs measure? When to worry? Daniel J. Lovell, MD, MPH will help us understand what labs measure and how families can use labs as a tool in their child’s care, as well as new and emerging tools that can be useful in determining the effectiveness of different treatment plans. Dr. Lovell is the Joseph E. Levinson Endowed Chair in Pediatric Rheumatology in the Division of Rheumatology at Cincinnati Children’s Hospital Medical Center where he treats children with juvenile myositis.
Regional Event
Children's Hospital Los Angeles - Annual Holiday Yacht Party
Join local families for an evening of holiday cheer on the Fanta Sea One. This event benefits the Children’s Hospital Los Angeles and Cure JM Foundation. RSVP link coming soon!
Virtual Event
Grandparent Council Meeting
Calling all grandparents! We invite you to join our next Grandparent Council meeting on Zoom. Come learn how to support the JDM warrior in your life.
Regional Event
Compete 4 Cures 2024
Kick off the New Year and Compete 4 Cures! Join Cory Fiene and Friends for the 9th Annual Tennis and Pickleball Charity Tournament to support critical research for rare disease patients and their families. This year, Cure JM Foundation is the benefiting charity for this event. Ticket sales will open soon!
Virtual Event
Parent Support Group
Our next parent support group will be led by Candace Domayer Ellrich (therapist and JM parent) and co-facilitated by Michelle McNaught Best, JM mom and NAMI support group leader. They will touch on the topic of kids in distress and how to manage possible suicidal ideation or talk of “not wanting to be here.” Along with the various permutations of this they will also present resources and ways to get help.
Regional Event
Cure JM Family Day at Chicago
Cure JM Family Day is a fun and interactive day for the whole family. Parents can learn about different topics related to Juvenile Myositis from doctors from Lurie Children’s, Children’s Wisconsin, and University of Chicago Medicine. Meanwhile, children will be enjoying fun supervised activities. Teens and Young Adults can decide if they prefer to attend the educational sessions or enjoy social time and ice breaker activities with other teens and young adults.
Regional Event
Cure JM Regional Family Conference- Texas
The Cure JM Clinical Care Network is please to invite you to join Cure JM families and esteemed doctors from across Texas for a fun and informative event at Dell Children’s Medical Center, Signe Auditorium.
There will be separate fun and supervised activities for kids as well as a teen’s room, while parents, grandparents and other adult family members are with the doctors. There will be time to connect with both the Doctors and other families and a social event following for those who can stay.
A detailed agenda and more information will be available in the coming weeks.
Regional Event
Cure JM Regional Family Conference- New York
Join Cure JM families and esteemed doctors from across New York for a fun and informative event in Westchester County.
There will be separate fun and supervised activities for kids as well as a teen’s room, while parents, grandparents and other adult family members are with the doctors. There will be time to connect with both the Doctors and other families and a social event following for those who can stay.
A detailed agenda and more information will be available in the coming weeks.
Regional Event
Cure JM Family Day at Seattle
Cure JM’s Clinical Care Network is excited to invite you to join other Cure JM families at Family Day. Join other families and these esteemed doctors for a fun and informative event: From Seattle Children’s Hospital: Susan Shenoi, MBBS, MS, RhMSUS, Aviya Lanis, MD, Chris Wong, DPT, SCS, CSCS and Alex Carpenter, PT, DPT. From the University of Washington: Christian Lood, Ph.D. at Seattle Children’s Sand Point Learning Center, Seattle, WA.
There will be separate fun and supervised activities for kids as well as a teen’s room, while parents, grandparents and other adult family members are with the doctors. There will be time to connect with both the Doctors and other families and a social event following for those who can stay.
More to come.