Regional & Virtual Events

We are excited to share upcoming regional and virtual community events that support our mission.

This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.

Join us in connecting with other families!

Virtual Event

Advocates Council Call

Sunday, July 28, 2024 at 5:00 PM Eastern

Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.

Virtual Event

July Town Hall

Monday, July 29, 2024 at 1:00 PM Eastern

Register now for the July “Ask the Doc” Town Hall on July 29, 2024 at 1:00 PM EST.  Join Dr. Angela Chun for expert guidance on setting treatment goals. Dr. Chun will host a Q&A session, offering valuable insights into key considerations for establishing treatment goals, essential topics to discuss with your doctor, and the benefits of having clear treatment objectives.

Two Grandparents laughing and smiling at Cure JM conference

Virtual Event

Grandparent Council Meeting

Thursday, August 22, 2024 03:00 PM EST

We invite you to join our next Grandparent Council Zoom meeting on Thursday, August 22nd, 2024. 

Connect with other grandparents and learn how to provide support to families along their JM journeys.

REgional Event

Kicks to Cure JM

Saturday, August 24th, 2024 at 9:15 AKDT

Welcome to Kicks to Cure JM! Join us at the Juneau Karate Academy for a fun-filled event for a great cause. Bring the whole family and kick your way to raising awareness and funds to find a cure for Juvenile Myositis. Whether you’re a seasoned martial artist or just looking to break a sweat for medical research, this event is perfect for all ages and skill levels. Let’s kick JM to the curb together! See you there!

REgional Event

6th Annual Swing Fore A Cure Columbus

Saturday, August 24th, 2024 at 6:45 AM

This is a chance for members of our community to come together and show support for these special kids and support the work of the Columbus Chapter of Cure JM.

Questions? Contact Kristen Schnurbusch at SwingForACureOhio@gmail.com or 614-402-0119

Two Grandparents laughing and smiling at Cure JM conference

Virtual Event

Grandparent Council Meeting

Thursday, September 26, 2024 03:00 PM EST

We invite you to join our next Grandparent Council Zoom meeting on Thursday, August 22nd, 2024. 

Connect with other grandparents and learn how to provide support to families along their JM journeys.

Virtual Event

Advocates Council Call

Sunday, September 29, 2024 at 5:00 PM Eastern

Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.

Regional Event

Cure JM Family Day - Pittsburgh

Saturday, October 19, 2024
Cure JM’s Clinical Care Network is excited to invite you to Cure JM Family Day in Pittsburgh.  Join other JM families for a fun and informative event with doctors from our Cure JM Clinical Care Network. There will be separate fun and supervised activities for kids as well as a teen’s room while parents, grandparents, and other adult family members are in educational sessions with the doctors. There will be time to connect with both the doctors and other families and a social event to close out the day.

More to come.

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