Regional & Virtual Events
We are excited to share upcoming regional and virtual community events that support our mission.
This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.
Join us in connecting with other families!
Virtual Event
Grandparent Council Meeting
We invite you to join our next Grandparent Council Zoom meeting on Thursday, April 25th, 2024.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Regional Event
Cure JM Family Day - Duke
Cure JM’s Clinical Care Network is excited to invite you to Cure JM Family Day at Duke. Join other Cure JM families for a fun and informative event with doctors from our Cure JM Clinical Care Network and Center of Excellence.
There will be separate fun and supervised activities for kids as well as a teen’s room while parents, grandparents, and other adult family members are in session with the doctors. There will be time to connect with both the doctors and other families, and a social event will follow for those who can stay.
More to come.
Virtual Event
Grandparent Council Meeting
We invite you to join our next Grandparent Council Zoom meeting on Thursday, May 23rd, 2024.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Advocates Council Call
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
Regional Event
Cure JM Family Day - Pittsburgh
More to come.