Connects & Conversations

We are excited to share upcoming regional and virtual community events that support our mission.

This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.

Join us in connecting with other families!

Online Event

Being a dad of a child with a rare disease can be overwhelming—but you don’t have to navigate it alone. At Cure JM, we understand the ups and downs that come with caring for a child with juvenile myositis, and we know how valuable it is to connect with others who get it.

Dads’ Connect is a space for fathers to share experiences, swap practical tips, ask questions, and support one another through the challenges of JM. Whether you’re looking for guidance, encouragement, or simply a community of dads who understand, this is your place to connect and recharge.

Register Here ->

Online Event

Are you a young adult with JM interested in advocacy but not sure where to start? This is your moment! Join us on January 18 for a virtual Advocacy & Storytelling Workshop. We’ll break down what advocacy actually means and help you turn your lived experience into a story that can make an impact. No medical expertise. No public speaking. A recording will be available. Learn more

Online Event

Cure JM is kicking off 2026 with the first Advocates Council for Young Adults meeting of the year and we invite teens and young adults (ages 18-30) living with juvenile myositis to join us.

This virtual meeting is an easy, no-pressure introduction to the Advocates Council. You’ll learn how young people can get involved in 2026, connect with other teens and young adults, share patient perspectives, and support Cure JM’s advocacy, research, and community efforts. Participation is flexible, and there’s no obligation to join a committee or take on a leadership role.

Curious or thinking about getting involved?

Complete our Advocates Council Interest Form to receive meeting details and updates.

Online Event

Thursday, January 22, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you. 

Online Event

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you. 

Online Event

Thursday, February 26, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you. 

Online Event

Thursday, March 26, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Being a dad of a child with a rare disease can be overwhelming—but you don’t have to navigate it alone. At Cure JM, we understand the ups and downs that come with caring for a child with juvenile myositis, and we know how valuable it is to connect with others who get it.

Dads’ Connect is a space for fathers to share experiences, swap practical tips, ask questions, and support one another through the challenges of JM. Whether you’re looking for guidance, encouragement, or simply a community of dads who understand, this is your place to connect and recharge.

Register Here ->

Online Event

Thursday, April 23, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you. 

Online Event

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you. 

Online Event

Thursday, May 28, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Thursday, June 25, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Being a dad of a child with a rare disease can be overwhelming—but you don’t have to navigate it alone. At Cure JM, we understand the ups and downs that come with caring for a child with juvenile myositis, and we know how valuable it is to connect with others who get it.

Dads’ Connect is a space for fathers to share experiences, swap practical tips, ask questions, and support one another through the challenges of JM. Whether you’re looking for guidance, encouragement, or simply a community of dads who understand, this is your place to connect and recharge.

Register Here ->

Online Event

Thursday, July 23, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Thursday, August 27, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Thursday, September 24, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Thursday, October 22, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Online Event

Thursday, November 26, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

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