Regional & Virtual Events

We are excited to share upcoming regional and virtual community events that support our mission.

This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.

Join us in connecting with other families!

Virtual Event

Advocates Council Call

Sunday, May 26, 2024 at 5:00 PM Eastern

Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.

Two Grandparents laughing and smiling at Cure JM conference

Virtual Event

Grandparent Council Meeting

Thursday, May 30, 2024 03:00 PM EST

We invite you to join our next Grandparent Council Zoom meeting on Thursday, May 30th, 2024. 

Connect with other grandparents and learn how to provide support to families along their JM journeys.

Regional Event

Pickleball Fundraiser and Walk Event

Saturday, June 1, 2024 at Las Colinas Middle School
The Joy Family will be hosting a Walk Event-Pickleball tournament at Las Colinas. You can do one or both! Pickleball has set times for each division, but you can come and walk anytime. Come meet a local family and support better treatments, improved quality of life, and a cure for all kids diagnosed with JDM!                                              

Virtual Event

Town Hall: Ask The Doc

Wednesday, June 5, 2024 at 3:00 PM Eastern

This is a presentation for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our two presenters will talk about ways parents can calm themselves, give them tips for talking to their kids with age-appropriate information, and know when to find an outside therapist or other expert. There will be time for Q & A.

Virtual Event

Town Hall: Ask The Doc

Wednesday, June 12, 2024 at 12:00 PM Eastern

Join Cure JM Foundation’s June “Ask the Doc” Town Hall to hear from myositis expert Dr. Julie Paik. Dr. Paik will provide insight into how and why a class of drugs called “JAKs” can be helpful to patients. This class of drugs includes treatments you may have heard of such as Xeljanz, Olumiant, or Rinvoq, among others.

Regional Event

Cure JM Family Day - Pittsburgh

Saturday, October 19, 2024
Cure JM’s Clinical Care Network is excited to invite you to Cure JM Family Day in Pittsburgh.  Join other JM families for a fun and informative event with doctors from our Cure JM Clinical Care Network. There will be separate fun and supervised activities for kids as well as a teen’s room while parents, grandparents, and other adult family members are in educational sessions with the doctors. There will be time to connect with both the doctors and other families and a social event to close out the day.

More to come.

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