Regional & Virtual Events
We are excited to share upcoming regional and virtual community events that support our mission.
This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.
Join us in connecting with other families!
Regional Event
Cure JM Family Day - Pittsburgh
More to come.
Virtual Event
Grandparent Council Meeting
We invite you to join our next Grandparent Council Zoom meeting on Thursday, September 26th, 2024.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Advocates Council Call
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
Virtual Town Hall
JDM 101: Lo Que Los Padres Necesitan Saber
Únase a nosotros para escuchar al Dr. Torres. JDM 101: Lo Que Los Padres Necesitan Saber – Prepárate con el conocimiento esencial para enfrentar la dermatomiositis juvenil (JDM). Esta guía ofrece a los padres la información clave necesaria para comprender, manejar y abogar por la salud de su hijo. In English: Join us in hearing from Dr. Torres. JDM 101: What Parents Need to Know – Equip yourself with essential knowledge to navigate juvenile dermatomyositis (JDM). This guide offers parents the crucial information needed to understand, manage, and advocate for their child’s health.
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Virtual Town Hall
Movement is Medicine
Join us in hearing from Dr. Feldman on how to manage your journey with juvenile myositis by embracing exercise as a powerful and essential component of treatment, fostering strength, resilience, and overall well-being.
Virtual Event
Grandparent Council Meeting
We invite you to join our next Grandparent Council Zoom meeting on Thursday, October 24th, 2024.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Town Hall
Calcinosis - What We Know & How to Treat It
Join us for an in-depth town hall and live Q&A where we will unravel the complexities of calcinosis in juvenile myositis (JM). Dr. Christian Lood and Dr. Adam Schiffenbauer will provide a comprehensive overview of the latest advancements in treatment and share new research findings.
Calcinosis, the formation of calcium deposits in soft tissues, presents a significant challenge in the management of JM. Understanding its mechanisms and exploring innovative treatment options are essential for improving patient outcomes. During this town hall, experts will present the latest research on calcinosis, discussing how new findings are reshaping treatment strategies and offering hope for more effective management of this condition.
Our panel of specialists will delve into emerging therapies, their potential impacts, and real-world results from recent studies. You’ll gain valuable insights into the evolving landscape of calcinosis care, including novel approaches that could revolutionize treatment protocols.
Whether you’re a caregiver, patient, or healthcare professional, this town hall promises to equip you with the knowledge and tools needed to navigate the complexities of calcinosis in JM. Don’t miss this opportunity to stay informed and engaged with the latest advancements in this critical area of juvenile myositis care.
Virtual Town Hall
Navigating the Future- A Guide to 2nd Line Treatments
Join us in hearing from Dr. Shenoi on how to unlock the knowledge you need to make informed decisions about 2nd line treatments and the promising new therapies on the horizon. Understand the next steps in your treatment journey, and be empowered with the latest insights and options. Take control of your health with confidence—your path to better outcomes starts here.
Virtual Event
Grandparent Council Meeting
We invite you to join our next Grandparent Council Zoom meeting on Thursday, November 28th, 2024.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Town Hall
Unlocking the Key to New Treatments and Cures
Join us in hearing from Dr. Turnier and Dr. Neely as they dive into the cutting-edge world of cellular research, where breakthroughs are paving the way for innovative JDM treatments. Explore how understanding the intricate workings of cells is revolutionizing medicine and bringing us closer to life-changing solutions. Join us on this journey of discovery because the key to a healthier future starts at the cellular level.
Virtual Town Hall
Looking Ahead to 2025: A Year of Hope, Progress, and Advancement for Cure JM
Join us as we hear from Jim Minow, Dr. Andrew Heaton, and Shannon Malloy as we start a new year; a brighter future emerges for Cure JM, thanks to the unwavering dedication of our incredible community. Your extraordinary commitment to funding groundbreaking research continues to drive us forward. Join us in celebrating the strides we’ve made together and explore the remarkable impact of your support. Together, we’ll set our sights on even more remarkable achievements in the coming year. Here’s to a future filled with hope, progress, and continued success toward better treatments and a cure.
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Virtual Town Hall
Mastering Early JDM Flare Detection for Better Outcomes
Join us as we hear from Dr. Turnier and Dr. Sabbagh. Catch It Early, Control It Faster: Discover expert tips for spotting and navigating Juvenile Dermatomyositis (JDM) flares for better control and brighter outcomes
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.