Our February Town Hall featured a conversation designed for parents, grandparents, and caregivers navigating life with Juvenile Myositis. A small panel of young adults in their 20s who grew up with JM shared honest reflections on what they wish parents understood, what helped them most, and what—despite good intentions—made things harder along the way. Rather than offering a roadmap or one-size-fits-all answers, this discussion invited families to listen, reflect, and better understand the lived experience of JM through the voices of those who have walked it into adulthood.
Resources for Patients Who Have Pain
Here are some resources and recommendations for ways of addressing pain. These come from pediatric rheumatologists and other medical providers/researchers.
