Our February Town Hall featured a conversation designed for parents, grandparents, and caregivers navigating life with Juvenile Myositis. A small panel of young adults in their 20s who grew up with JM shared honest reflections on what they wish parents understood, what helped them most, and what—despite good intentions—made things harder along the way. Rather than offering a roadmap or one-size-fits-all answers, this discussion invited families to listen, reflect, and better understand the lived experience of JM through the voices of those who have walked it into adulthood.
2024 Cure JM January Symposium
Recently, the Cure JM Clinical Care Network hosted our first virtual symposium of 2024, “Juvenile Dermatomyositis – Advances in Clinical Care, Basic Research, and Translational Studies.” World-leading researchers and clinicians presented sessions on various topics with the primary goal of enhancing the overall patient and provider experience through collaboration and best practice sharing.
