Our February Town Hall featured a conversation designed for parents, grandparents, and caregivers navigating life with Juvenile Myositis. A small panel of young adults in their 20s who grew up with JM shared honest reflections on what they wish parents understood, what helped them most, and what—despite good intentions—made things harder along the way. Rather than offering a roadmap or one-size-fits-all answers, this discussion invited families to listen, reflect, and better understand the lived experience of JM through the voices of those who have walked it into adulthood.
Exercise and Juvenile Myositis
Over the past few years, exercise in juvenile myositis patients has garnered the attention of experts. Exercise is regarded as an important therapy in JM and should be done whether a child is in active disease or remission.
