“Ask the Doc” – Sun Protection Tricks & Tips for Summer 2023

With summer underway, we are honored to share our “Ask the Doc” Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children’s Hospital, share the importance of sun protection for JM patients.

Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know

What role does sun protection play in managing JM? Will my child be able to enjoy outdoor activities this summer with active disease? What sun protection items offer the best protection?

Click above to watch the full session and Q&A.

IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

The Carpenters Lemons to Lemonade- web

The Carpenters turn Lemons to Lemonade!

The Carpenter family hopes their efforts will raise awareness for Cure JM and bring hope to families like theirs.

The community went above and beyond in showing their support for the lemonade stand.

The 1000 cups with lids the Carpenters ordered quickly cleared out as more and more lemonade was sold!

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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