Support for Families Living with Juvenile Myositis
When Rare Disease and Anxiety Collide: How SPACE Can Help
By definition, a rare disease affects a very small percentage of the population. Juvenile myositis certainly fits that criteria, impacting approximately 1 in 500,000 children. For
April 2026 Town Hall – Supportive Parenting for Anxious Childhood Emotions with Dr. Eli Lebowitz
Parenting a child with chronic illness often means carrying more than you imagined—anxiety, treatment pressures, and the constant effort to protect and soothe can leave
March 2026 Town Hall – JM 101: Everything we Know about Juvenile Myositis in 2026
Watch this recorded Town Hall to learn more about juvenile myositis diagnosis and treatment. In this session, Dr. Stacey Tarvin shares insights into best practice
Early Promising Data in CAR-T for Myositis
We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).
What we heard
What We Know About Calcinosis & How to Treat It
Medically Reviewed by Angela Chun, MD on February 9, 2026 and Belina Yi, DO on February 25, 2026. Cure JM shares medical resources to support informed conversations
Anifrolumab: A New Monoclonal Antibody Therapy for Juvenile Dermatomyositis and What Families Should Know
Based on presentations and an expert panel at Cure JM’s January 2026 Virtual Summit on JIIM Research & Care At the January 2026 Cure JM
Home IVIG: A Family Perspective
Medically Reviewed by Dawn Wahezi, MD, MS on January 26, 2026. Cure JM shares family experiences to support informed conversations between families and their care teams. Access
February 2026 Town Hall – Through Their Eyes: A Q&A Panel of Young Adults Living with JM
Our February Town Hall featured a conversation designed for parents, grandparents, and caregivers navigating life with Juvenile Myositis. A small panel of young adults in
Shared DNA Clues Point to Faster Treatments for Juvenile Myositis
In a study funded by the Cure JM Foundation and spearheaded by Dr. Younghun Han of the Baylor College of Medicine, scientists compared the DNA
The Loneliness We Don’t Talk About
By Ronda Thorington, MA, LCP Summary:In rare disease caregiving, loneliness often hides in plain sight between appointments, responsibilities, and the need to stay strong. This
RESET-Myositis Trial: CAR-T Cell Therapy (CABA-201)
Contact Info: A phase 1/ 2 clinical trial, investigating a treatment that uses your own T cells to treat myositis Who Can Participate: A study
January 2026 Cure JM Town Hall – Six Changes Families Will See in 2026
The January 2026 Cure JM Town Hall is about what’s changing for families this year—how care is evolving, what research opportunities are emerging, and how
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