Support for Families Living with Juvenile Myositis
A Historic Milestone: FDA Approves Lisraya/brepocitinib for Myositis
The myositis community has reached a significant new treatment milestone. On August 27, 2026, the U.S. Food and Drug Administration approved Lisraya (brepocitinib) for adults
What to Expect When You Weren’t Expecting This
When I was expecting my first child, my favorite reference book was What to Expect When You’re Expecting. Every twinge, every movement, every bout of
August 2026 Town Hall – First Steps Forward for the Newly Diagnosed
Families received clear, compassionate guidance during this session, designed to support those newly diagnosed or looking for fresh perspective. Dr. Angela Chun broke down the
Back to School…Again
It feels like I blinked twice and summer disappeared. Just a few weeks ago we were looking forward to slower mornings, fewer alarms, and maybe,
Cure JM-Funded Research Explores Why JDM Affects Children Differently
Research Update | July 2026 With support from a two-year Cure JM research grant, Dr. Rie Karasawa of St. Marianna University School of Medicine in
Cure JM Leader Publishes New JDM Research
Cure JM is proud to share exciting news from our community. Dr. Tracy Van Ness, DHSc, PA‑C, has published a new peer‑reviewed article, Juvenile Dermatomyositis: Multisystem Impacts
Summer on Our Own Terms
Summer used to fill me with dread. As the parent of a child with a rare disease, the season my other kids lived for was
June 2026 Town Hall – CAR-T
On June 16, Cure JM’s Shannon Malloy sat down with Tania Gonzalez Rivera, VP of Medical Affairs, and Courtney Little, Senior Director and Clinical Scientist
What Was Lost in the Fire: The Other Side of Resilience for Siblings of Children with Rare Disease
Siblings of children with rare disease are often described as resilient, empathetic, and strong beyond their years, and they are. But behind those strengths are
May 2026 Town Hall – The Pediatric to Adult Care Transition with Dr. Ankur Kamdar
The Pediatric to Adult Care Transition with Dr. Ankur Kamdar JDM doesn’t turn into adult dermatomyositis when a young person turns 18 — the disease
When Rare Disease and Anxiety Collide: How SPACE Can Help
By definition, a rare disease affects a very small percentage of the population. Juvenile myositis certainly fits that criteria, impacting approximately 1 in 500,000 children. For
April 2026 Town Hall – Supportive Parenting for Anxious Childhood Emotions with Dr. Eli Lebowitz
Parenting a child with chronic illness often means carrying more than you imagined—anxiety, treatment pressures, and the constant effort to protect and soothe can leave
Join Cure JM
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
