Parent and Teen Mentors

Feeling Lost After a Myositis Diagnosis? Find Support with Cure JM Mentors!

Cure JM is a strong community – a “Family of Families” – and we know how overwhelming a new myositis diagnosis can be. That’s why we offer our Cure JM Mentor Program, connecting you with experienced individuals who have walked a similar path and come through healthy and thriving!

Empowered Families, Free Support: That’s the Cure JM Promise. We care deeply about every family facing myositis. That’s why all our services are completely free of charge.

Here’s how our mentors can help:

  • Offer encouragement and hope: Our mentors understand the challenges you face because they’ve been there. They’ll share their stories of overcoming myositis and thriving.
  • Provide practical guidance: Get valuable tips and tricks for managing this condition, from our real-life experience.
  • Fill in the knowledge gaps: Learn what our mentors wish they knew when they were first diagnosed.
  • Ask your questions: Learn from others how to cope with medication side effects, nutrition, exercise, school accommodations, and more.

The program is flexible to fit your needs:

  • Connect on your terms: Reach out to your mentor by text, social media message (DM), email, or phone call – whichever you feel most comfortable with.

Ready to find your mentor?

  • Visit our website: Join at www.curejm.org/join to get started.
  • Text us: Simply send a message to 202-596-6267 to get started.

Don’t face myositis alone. Find support and guidance with Cure JM Mentors!

“My parent mentor was a lifesaver! Having someone to text with questions about our new reality with myositis made all the difference. I’m so grateful!” Rachel, Mom to a Teen with Myositis (April 2024)


Find Your Perfect Match: Cure JM’s Tailored Mentor Programs

Cure JM understands that everyone’s journey with myositis is unique. That’s why we offer a diverse range of mentor programs to connect you with someone who truly gets it.

Here’s who you can connect with:

  • Parent Mentors: Our nationwide network pairs you with experienced parents who have walked a similar path.
    • Mom and Dad Mentors: Get support specific to your role, whether you’re a mother or father facing myositis with your child.
  • Teen and Young Adult Mentors: Find someone who understands your teenage or young adult experience through our social media groups and dedicated Teen/Young Adult Mentors.
  • Grandparent Mentors: Connect with grandparents who share the challenges and joys of supporting a grandparent with myositis.

¿Habla Español?  Tenemos mentores que hablan español para conectarte con alguien que te entienda perfectamente. Contacta a betsy.leon@curejm.org para saber más.  

Join today – there’s no obligation! Visit https://www.curejm.org/join to get started

Cure JM: “A Family of Families,” dedicated to helping every family thrive!

Tips for Teens

Here are some tips from Anna, Morgan and Samantha to help you navigate medical and social issues like medications, socializing, school, and diet.

Three kids in dark blue Cure JM shirts holding a hope sign

Cure JM Foundation Literature

The following brochures, handouts and posters are available for online viewing and printing. If you need professionally printed copies for an event, please contact us.

Ways to help your kids and yourself cope living with JM

Cure JM Mental Health Coordinator, Suzanne Edison discusses ways to help your kids and yourself cope living with JM. Learn about emotional and behavioral challenges that often come with chronic diseases like juvenile myositis and ways to help patients and caregivers cope.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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