August 2026 Town Hall – First Steps Forward for the Newly Diagnosed

Families received clear, compassionate guidance during this session, designed to support those newly diagnosed or looking for fresh perspective. Dr. Angela Chun broke down the basics of JM, explained common treatments and medications, shared practical tips on sun protection and managing medical records, and offered strategies for working effectively with a healthcare team.

Dr. Chun is an Attending Physician in Rheumatology at Lurie Children’s Hospital in Chicago and an Assistant Professor of Pediatrics (Rheumatology) at Northwestern University Feinberg School of Medicine. She also serves on the steering committee of Cure JM’s Clinical Care Network.

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

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