Cure JM Leader Publishes New JDM Research

Tracy Van Ness

Cure JM is proud to share exciting news from our community. Dr. Tracy Van Ness, DHSc, PA‑C, has published a new peer‑reviewed article, Juvenile Dermatomyositis: Multisystem Impacts and Evolving Treatment Paradigms, contributing important insights to the scientific understanding of JDM. 

Access the article

Dr. Van Ness is a standout leader in the JM community — serving as a Director on the Cure JM Board of Directors, a member of the Research Committee, Co‑Chair of Walk Strong New York, and a dedicated JM mom. Her work bridges clinical expertise, research leadership, and lived experience, making her voice especially meaningful in advancing care for children, teens, and young adults with JM.

This publication highlights Dr. Van Ness’s commitment to improving outcomes for JM families and strengthening the research foundation that drives better treatments and long‑term health.

Cure JM celebrates this achievement and is grateful for the many ways Dr. Van Ness helps move our mission forward.

Volunteering Speaks Volumes

Are you eager to make a meaningful impact and connect with a community committed to an important cause? The Cure JM Foundation welcomes passionate volunteers like you! Whether you can spare just a few moments or have more time to give, your dedication can greatly advance our mission.

Cure JM Community Advisory Board

Cure JM’s Community Advisory Board plays a vital role in representing JM families from diverse backgrounds to help support this cutting edge research project. Cure JM CAB members are the link between the greater JM community and the project’s research team, working together to ensure that the needs of the entire JM community are understood and addressed.

Town Hall April 2024, IVIG, Tory, Cherwin, Vogel, Alderfer

IVIG – What Parents and Caregivers Need to Know

Hear from a panel of four experts about IVIG, including important tips for a successful IVIG journey.

The panel will discuss a variety of must-know information on successful IVIG treatment days, navigating the system, at-home vs. outpatient options, pre & post-treatment checklists, and more.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.