September 2025 Town Hall – TRANSFORMING CARE OVER THE LAST 35 YEARS

Dr. Feldman paints a ”then vs. now”’ picture of progress over the past 35 years, when JM care was fragmented and inconsistent, versus today’s coordinated approach. He discusses how these efforts are helping bring clinical trials from the research bench to the clinic exam room faster and accelerating real-world improvements for kids and families living with this rare disease.

Dr. Brian Feldman is chair of Cure JM’s Medical Advisory Board and a global leader in pediatric rheumatology. Based at the Hospital for Sick Children and the University of Toronto, Dr. Feldman is internationally recognized for his contributions to clinical research and care delivery in childhood autoimmune diseases.

2025 Family Conference Finding Hope

Erin and Madi’s Story: Finding Hope at the Cure JM Family Conference

In February 2023, Erin Hicks and her daughter Madi faced a life-altering moment. After a visit to the National Institutes of Health in Seattle, Madi, a vibrant 12-year-old soccer player from Kansas City, Missouri, was diagnosed with juvenile dermatomyositis (JDM). “We walked out feeling overwhelmed and lost,” Erin recalls. Research fueled panic as Madi’s condition worsened, her energy fading on the soccer field. Hope was slipping away.

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Cure JM apoya a las familias, los pacientes y la comunidad investigadora de la miositis juvenil.

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