Connects & Conversations

Nos complace compartir los próximos eventos comunitarios regionales y virtuales que apoyan nuestra misión.

Esta página es su única parada para "estar al tanto" de los próximos eventos regionales, reuniones en línea de apoyo a pacientes y familiares, y simposios educativos presenciales y en línea.

Únase a nosotros para conectar con otras familias.

Evento en línea

Being a dad of a child with a rare disease can be overwhelming—but you don’t have to navigate it alone. At Cure JM, we understand the ups and downs that come with caring for a child with juvenile myositis, and we know how valuable it is to connect with others who get it.

Dads’ Connect is a space for fathers to share experiences, swap practical tips, ask questions, and support one another through the challenges of JM. Whether you’re looking for guidance, encouragement, or simply a community of dads who understand, this is your place to connect and recharge.

Register Here ->

Evento en línea

Are you a young adult with JM interested in advocacy but not sure where to start? This is your moment! Join us on January 18 for a virtual Advocacy & Storytelling Workshop. We’ll break down what advocacy actually means and help you turn your lived experience into a story that can make an impact. No medical expertise. No public speaking. A recording will be available. Learn more

Evento en línea

Cure JM is kicking off 2026 with the first Advocates Council for Young Adults meeting of the year and we invite teens and young adults (ages 18-30) living with juvenile myositis to join us.

This virtual meeting is an easy, no-pressure introduction to the Advocates Council. You’ll learn how young people can get involved in 2026, connect with other teens and young adults, share patient perspectives, and support Cure JM’s advocacy, research, and community efforts. Participation is flexible, and there’s no obligation to join a committee or take on a leadership role.

Curious or thinking about getting involved?

Complete our Advocates Council Interest Form to receive meeting details and updates.

Evento en línea

Thursday, January 22, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Nuestras llamadas de conexión entre madres proporcionan un entorno seguro y de apoyo en el que puedes compartir abiertamente tus experiencias, hacer preguntas, ofrecer consejos y conectar con otras madres increíbles. Si buscas apoyo emocional, consejos prácticos para gestionar JM o simplemente un grupo de mujeres que "lo entienden", este es tu lugar. 

Evento en línea

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Nuestras llamadas de conexión entre madres proporcionan un entorno seguro y de apoyo en el que puedes compartir abiertamente tus experiencias, hacer preguntas, ofrecer consejos y conectar con otras madres increíbles. Si buscas apoyo emocional, consejos prácticos para gestionar JM o simplemente un grupo de mujeres que "lo entienden", este es tu lugar. 

Evento en línea

Thursday, February 26, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Nuestras llamadas de conexión entre madres proporcionan un entorno seguro y de apoyo en el que puedes compartir abiertamente tus experiencias, hacer preguntas, ofrecer consejos y conectar con otras madres increíbles. Si buscas apoyo emocional, consejos prácticos para gestionar JM o simplemente un grupo de mujeres que "lo entienden", este es tu lugar. 

Evento en línea

Thursday, March 26, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Being a dad of a child with a rare disease can be overwhelming—but you don’t have to navigate it alone. At Cure JM, we understand the ups and downs that come with caring for a child with juvenile myositis, and we know how valuable it is to connect with others who get it.

Dads’ Connect is a space for fathers to share experiences, swap practical tips, ask questions, and support one another through the challenges of JM. Whether you’re looking for guidance, encouragement, or simply a community of dads who understand, this is your place to connect and recharge.

Register Here ->

Evento en línea

Thursday, April 23, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Nuestras llamadas de conexión entre madres proporcionan un entorno seguro y de apoyo en el que puedes compartir abiertamente tus experiencias, hacer preguntas, ofrecer consejos y conectar con otras madres increíbles. Si buscas apoyo emocional, consejos prácticos para gestionar JM o simplemente un grupo de mujeres que "lo entienden", este es tu lugar. 

Evento en línea

Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs.

That’s why we invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.

Nuestras llamadas de conexión entre madres proporcionan un entorno seguro y de apoyo en el que puedes compartir abiertamente tus experiencias, hacer preguntas, ofrecer consejos y conectar con otras madres increíbles. Si buscas apoyo emocional, consejos prácticos para gestionar JM o simplemente un grupo de mujeres que "lo entienden", este es tu lugar. 

Evento en línea

Thursday, May 28, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Thursday, June 25, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Being a dad of a child with a rare disease can be overwhelming—but you don’t have to navigate it alone. At Cure JM, we understand the ups and downs that come with caring for a child with juvenile myositis, and we know how valuable it is to connect with others who get it.

Dads’ Connect is a space for fathers to share experiences, swap practical tips, ask questions, and support one another through the challenges of JM. Whether you’re looking for guidance, encouragement, or simply a community of dads who understand, this is your place to connect and recharge.

Register Here ->

Evento en línea

Thursday, July 23, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Thursday, August 27, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Thursday, September 24, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Thursday, October 22, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

Evento en línea

Thursday, November 26, 2026, at 3:00 PM Eastern

The Cure JM Grandparent Connect group is the platform for learning and bonding for all grandparents of patients living with juvenile myositis. Connect with other grandparents and learn how to provide support to families along their JM journeys.

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