Cure JM January 2025 – Virtual Summit
In January, the Cure JM Clinical Care Network was pleased to invite juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best-practice clinical care in juvenile dermatomyositis.
Cure JM September 2024 – Virtual Summit
We are pleased to invite all juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations, sharing clinical best practices to help providers diagnose, treat, and care for juvenile myositis patients.
The Potential of JAKs in Fighting JM
In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.
Understanding Second-Line Treatments and Side Effects
Second-line treatments refer to options beyond steroids and methotrexate. They are designed to manage JM while reducing reliance on those medications. We understand that adding new treatments to your child’s regimen can be intimidating. However, rest assured that your doctor has carefully considered the benefits and risks of each option to design the best treatment plan for your family.
Optimizing Myositis Care: The Role of Biologics
Biologics are a therapies that derived from living cells or through biological processes. They are a promising new class of drugs used to treat myositis. Unlike traditional medications that suppress the entire immune system, biologics target specific parts of the immune system involved in the inflammatory process. A few notes: Types of biologics used in […]
Skin Disease for Clinicians
Dr. Victoria Werth, M.D., discusses the identification and treatment of skin manifestations associated with dermatomyositis. Her talk covers diagnostic criteria, various skin manifestations, the latest treatment approaches, and the complexities of managing this condition, all aimed at improving patient outcomes and quality of life.
Treatment Plans for Juvenile Myositis
A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms can change over time.
Cure JM May 2024 – Virtual Symposium
The Cure JM Clinical Care Network hosted our second quarterly virtual symposium of 2024, “Juvenile Dermatomyositis – Advances in Clinical Care, Basic Research, and Translational Studies.” World-leading researchers and clinicians presented sessions on various topics, with the primary goal of enhancing the overall patient and provider experience through collaboration and best practice sharing.
Research Volunteers and Assistance Needed
Help researchers find the cause and a cure for juvenile myositis by volunteering for these important studies.
Pioneering JM Care – Integrating Research With a Multidisciplinary Approach to Care
Dr. Jessica Turnier of the University of Michigan / Mott’s Children’s Hospital is dedicated to creating new directions for JM research and wider perspectives on how it is treated. About the University of Michigan, she states, “When I came to Michigan, there were a lot of myositis patients, and I just developed a really strong connection with those patients.”
What We Know About Calcinosis & How to Treat It
At the October 25th Town Hall, Dr. Christian Lood, professor and researcher at the University of Washington and Seattle Children’s Hospital, presented on the topic of treating a potential complication of juvenile myositis known as calcinosis. Calcinosis is the accumulation of calcium phosphate crystals in soft tissue (skin, muscle). It appears as hard, irregular nodules […]
2024 Cure JM January Symposium
Recently, the Cure JM Clinical Care Network hosted our first virtual symposium of 2024, “Juvenile Dermatomyositis – Advances in Clinical Care, Basic Research, and Translational Studies.” World-leading researchers and clinicians presented sessions on various topics with the primary goal of enhancing the overall patient and provider experience through collaboration and best practice sharing.
Affordable and Accessible Treatments for JM
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.
Embedded Behavioral Health Care in a Center of Excellence
A recently published study on integrating mental health care into a pediatric rheumatology specialty clinic, supported by the Cure JM Foundation, concluded that the need for mental health care is great and despite the challenges, with the coordination of various stakeholders, it is possible. Published in Frontiers, the principal authors were Dr. Susan Shenoi, a pediatric […]
Cabaletta Bio Presents Promising Early Data on CAR-T Therapy for Myositis
We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).
What we heard was more than promising—it was astounding.
What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar.
Quarterly JM Medical News
The Cure JM Foundation produces a quarterly newsletter with the latest news, educational opportunities, and research updates about Juvenile Myositis.
Peer Support
Cure JM is an organization of parents, patients, and clinicians whose mission is to fund JM research, care, and support. We offer peer-support for every member of the family to help them thrive in their daily life with JM, comply with medication instructions, and connect with other families. We invite all clinicians of pediatric or […]
Published Research Studies and Abstracts Supported by Cure JM
There are a number of published studies about juvenile myositis. Browse this list of over 100 published research studies and abstracts.
10th Annual Cure JM Medical Symposium
The 10th Annual Cure JM Medical Symposium in partnership with Duke University happened May 13th, 2023, virtually, with presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best practice clinical care in juvenile dermatomyositis. For clinicians, researchers, and healthcare professionals unable to attend the event, we are honored to share […]
How Important is Exercise for JM Patients While on the Path to Recovery and Remission?
Juvenile myositis patients and parents of children with JM often ask how important exercise is while on the path to recovery and remission.
Protected: 2024 Juvenile Myositis Treatment Considerations
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Mental and Emotional Health FAQ for Caregivers
Why is emotional/mental health important to our JM kids? Where can I find out more about mental health issues for our JM kids? Where can I learn more about how JM influences anxiety and depression? Where can I learn more about the signs of anxiety and depression in kids and teens? Where can I get […]
Myositis and You
This comprehensive guide to juvenile dermatomyositis features over 450 pages with contributions from over 80 experts and medical professionals.
Transitioning Care From Pediatric Rheumatology to Adult Care
Dr. Sadun is a pediatric and adult rheumatologist at Duke University, a Cure JM Center of Excellence. She recently presented at the Global Conference on Myositis (GCOM) on transitioning care from pediatric rheumatology to adult care.
2022 Cure JM Medical Symposium
Juvenile Dermatomyositis: Advances in Basic Research, Translational Studies and Clinical care. Hosted by Duke University and Cure JM Foundation. March 12th, 2022.
Juvenile Myositis Educational Video
This video provides an overview of juvenile myositis for families newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM).
Emotional and Mental Health Information for Medical Providers
We recommend that mental health assessment and treatment options be an integral part of comprehensive care for children, adolescents, and adults with juvenile myositis.