June 2026 Town Hall – CAR-T
On June 16, Cure JM’s Shannon Malloy sat down with Tania Gonzalez Rivera, VP of Medical Affairs, and Courtney Little, Senior Director and Clinical Scientist at Cabaletta Bio, for a conversation about the RESET‑Myositis CAR‑T trial and new research updates presented at the European rheumatology conference. Dr. Holly Wobma, pediatric rheumatologist at Boston Children’s Hospital […]
Cure JM Virtual Summit on JIIM Research & Care – June 2026
Cure JM’s June Virtual Summit on JIIM Research & Care convened an international panel of clinicians and researchers to cover the latest findings in JM clinical outcomes, risk factors, and early‑life influences, along with new research models and tools that are shaping the next generation of myositis discovery. Session Agenda3:00pm-3:10 | IntroductionIntroduction Andrew Heaton, PhD, Chief […]
May 2026 Town Hall – The Pediatric to Adult Care Transition with Dr. Ankur Kamdar
The Pediatric to Adult Care Transition with Dr. Ankur Kamdar JDM doesn’t turn into adult dermatomyositis when a young person turns 18 — the disease remains distinct, and so do the care needs. That distinction makes the handoff from pediatric to adult care one of the most consequential moments in a JM family’s journey. The […]
Cure JM Virtual Mental Health Summit – April 2026
Cure JM recently hosted its Mental Health Summit, bringing together experts in pediatric anxiety and rheumatology to focus on integrating mental health support into care for children with juvenile myositis. Dr. Eli Lebowitz (Yale School of Medicine) introduced Supportive Parenting for Anxious Childhood Emotions (SPACE), an evidence-based approach that equips parents with practical tools to […]
April 2026 Town Hall – Supportive Parenting for Anxious Childhood Emotions with Dr. Eli Lebowitz
Parenting a child with chronic illness often means carrying more than you imagined—anxiety, treatment pressures, and the constant effort to protect and soothe can leave you feeling overwhelmed and alone. At this virtual Town Hall, we were honored to welcome Dr. Eli Lebowitz (Yale School of Medicine), creator of Supportive Parenting for Anxious Childhood Emotions […]
March 2026 Town Hall – JM 101: Everything we Know about Juvenile Myositis in 2026
Watch this recorded Town Hall to learn more about juvenile myositis diagnosis and treatment. In this session, Dr. Stacey Tarvin shares insights into best practice care, what families can expect along the treatment journey, and the current understanding of this disease. This discussion is designed to help families feel more informed and confident as they […]
Early Promising Data in CAR-T for Myositis
We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).
What we heard was more than promising—it was astounding.
What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar.
What We Know About Calcinosis & How to Treat It
Medically Reviewed by Angela Chun, MD on February 9, 2026 and Belina Yi, DO on February 25, 2026. Cure JM shares medical resources to support informed conversations between families and their care teams. At the October 25th (2024) Town Hall, Dr. Christian Lood, professor and researcher at the University of Washington and Seattle Children’s Hospital, presented on […]
Home IVIG: A Family Perspective
Medically Reviewed by Dawn Wahezi, MD, MS on January 26, 2026. Cure JM shares family experiences to support informed conversations between families and their care teams. Access to home infusion can vary based on factors such as geography, insurance, and caregiver support. The National Home Infusion Association has published helpful insights on how social determinants of health […]
February 2026 Town Hall – Through Their Eyes: A Q&A Panel of Young Adults Living with JM
Our February Town Hall featured a conversation designed for parents, grandparents, and caregivers navigating life with Juvenile Myositis. A small panel of young adults in their 20s who grew up with JM shared honest reflections on what they wish parents understood, what helped them most, and what—despite good intentions—made things harder along the way. Rather […]
Shared DNA Clues Point to Faster Treatments for Juvenile Myositis
In a study funded by the Cure JM Foundation and spearheaded by Dr. Younghun Han of the Baylor College of Medicine, scientists compared the DNA of more than three thousand people living with myositis to nearly twelve thousand healthy volunteers and found something striking. The major forms of myositis share much of the same genetic wiring.
RESET-Myositis Trial: CAR-T Cell Therapy (CABA-201)
Contact Info: A phase 1/ 2 clinical trial, investigating a treatment that uses your own T cells to treat myositis Who Can Participate: A study physician will determine final eligibility. How It Works: The trial is enrolling at multiple locations across the U.S., including: Accepting Juvenile Patients: Pediatric sites typically accept patients age 6 through […]
January 2026 Cure JM Town Hall – Six Changes Families Will See in 2026
The January 2026 Cure JM Town Hall is about what’s changing for families this year—how care is evolving, what research opportunities are emerging, and how Cure JM is supporting you beyond the clinic. Change #1: More Places to Get Expert JM Care The Cure JM Clinical Care Network – a collaborative community of devoted clinicians, […]
Understanding Skin Symptoms in Juvenile Dermatomyositis: What Parents Can Learn from Recent Research
Based on a presentation by Grace A. Osborne, MD, PhD, Pediatric Dermatologist, University of Michigan at the January 2026 Cure JM Virtual Summit on JIIM Research & Care When families first learn that their child has juvenile dermatomyositis, conversations often focus on muscles: strength, fatigue, and inflammation. Yet for many children, the most visible, persistent, […]
Descartes‑08: A New CAR‑T Trial for Juvenile Myositis and What Parents Should Know
Based on a presentation by Miloš Miljković, MD, PhD, Chief Medical Officer, Cartesian Therapeutics at the January 2026 Cure JM Virtual Summit on JIIM Research & Care. At Cure JM’s recent Virtual Medical Summit, doctors and researchers received an exclusive preview of a brand-new clinical trial that includes juvenile dermatomyositis. Dr. Miloš Miljković shared early […]
Cure JM Virtual Summit on Juvenile Idiopathic Inflammatory Myopathies – January 2026
January 15, 2026 In January, the Cure JM Clinical Care Network was pleased to invite juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best-practice clinical care in juvenile dermatomyositis. This event featured sessions on various topics, with the […]
December 2025 Town Hall – Live from Giving Tuesday
This Giving Tuesday, families and supporters joined us for an exciting update on the breakthroughs accelerating JM research and care. Executive Director Jim Minow walked through the newest developments in emerging therapies, clinical trials, and next-generation CAR-T approaches. Dr. Brian Feldman outlined why many clinicians believe we are entering a collaborative breakthrough era for JM […]
Cure JM September 2025 – Virtual Summit
Cure JM Virtual Summit on Juvenile Idiopathic Inflammatory Myopathies September 25, 2025 In September, the Cure JM Clinical Care Network was pleased to invite juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best-practice clinical care in juvenile dermatomyositis. […]
November 2026 Town Hall – Breaking New Research: What You Need to Know
In our November Town Hall, “Breaking New Research: What You Need to Know,” leading pediatric rheumatology experts Dr. Susan Kim, Dr. Sara Sabbagh, and Clinical Research Coordinator Tyler Sorensen share highlights from the latest advances in juvenile myositis research and care presented at the American College of Rheumatology Annual Meeting—the largest gathering of rheumatologists in […]
October 2026 Town Hall – Recorded Live from the American College of Rheumatology Convergence Conference
The Cure JM Virtual Town Hall streamed live from the American College of Rheumatology Convergence Conference—the largest gathering of rheumatology experts in the world. During this special session, the Cure JM team shared real-time updates from the front lines of cutting-edge Juvenile Myositis research. Top clinicians and researchers discussed the latest discoveries and how they’re […]
September 2025 Town Hall – TRANSFORMING CARE OVER THE LAST 35 YEARS
Dr. Feldman paints a ”then vs. now”’ picture of progress over the past 35 years, when JM care was fragmented and inconsistent, versus today’s coordinated approach. He discusses how these efforts are helping bring clinical trials from the research bench to the clinic exam room faster and accelerating real-world improvements for kids and families living […]
From Seed Grant to Scientific Breakthrough: How a Lab-Grown Muscle Could Change the Future of JM Treatment
It started with a small bet on a big idea. A few years ago, Cure JM took a chance, providing seed funding to Dr. Lauren Covert and her team at Duke University. Their goal? To build something no one had seen before: a living, lab-grown replica of human muscle that could mimic the effects of juvenile myositis (JM).
Cure JM Backed NATA Project Finds New Way to “Turn Off” Myositis Inflammation
Backed by funding from the Cure JM Foundation, scientists at the UK’s Nucleic Acid Therapy Accelerator (NATA) are creating tiny medicines that press the “quiet” button on the immune system’s mistaken alarm that causes myositis. How Is the Immune System Misbehaving in JM? Think of your immune system like a safety alarm. Interferon beta is […]
“Ask the Doc” Introduction to CAR Cell Therapies with Dr. Anne Stevens
In our most recent episode of “Ask the Doc,” we sat down with Dr. Anne Stevens, an esteemed member of the Cure JM Medical Advisory Board, to shed light on the various forms of CAR cell therapies that are making life-changing impacts in autoimmune diseases. Dr. Stevens is fusing her decades of experience in the […]
Cure JM May 2025 – Virtual Summit
In May, the Cure JM Clinical Care Network was pleased to invite juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best-practice clinical care in juvenile dermatomyositis.
Emotional Health Recognized as Vital Component of JDM Care
Caring for a child with juvenile myositis (JM) goes beyond managing flares and medications—it means supporting their whole well-being, including mental and emotional health. Research shows that children with chronic illnesses like JM are at a significantly higher risk for anxiety, depression, and emotional distress. These challenges can affect not just day-to-day life, but also treatment outcomes and long-term health
Understanding Second-Line Treatments and Side Effects
Second-line treatments refer to options beyond steroids and methotrexate. They are designed to manage JM while reducing reliance on those medications. We understand that adding new treatments to your child’s regimen can be intimidating. However, rest assured that your doctor has carefully considered the benefits and risks of each option to design the best treatment plan for your family.
Cure JM January 2025 – Virtual Summit
In January, the Cure JM Clinical Care Network was pleased to invite juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best-practice clinical care in juvenile dermatomyositis.
Cure JM September 2024 – Virtual Summit
We are pleased to invite all juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations, sharing clinical best practices to help providers diagnose, treat, and care for juvenile myositis patients.
The Potential of JAKs in Fighting JM
In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.
Optimizing Myositis Care: The Role of Biologics
Biologics are a therapies that derived from living cells or through biological processes. They are a promising new class of drugs used to treat myositis. Unlike traditional medications that suppress the entire immune system, biologics target specific parts of the immune system involved in the inflammatory process. A few notes: Types of biologics used in […]
Skin Disease for Clinicians
Dr. Victoria Werth, M.D., discusses the identification and treatment of skin manifestations associated with dermatomyositis. Her talk covers diagnostic criteria, various skin manifestations, the latest treatment approaches, and the complexities of managing this condition, all aimed at improving patient outcomes and quality of life.
Treatment Plans for Juvenile Myositis
A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms can change over time.
Cure JM May 2024 – Virtual Symposium
The Cure JM Clinical Care Network hosted our second quarterly virtual symposium of 2024, “Juvenile Dermatomyositis – Advances in Clinical Care, Basic Research, and Translational Studies.” World-leading researchers and clinicians presented sessions on various topics, with the primary goal of enhancing the overall patient and provider experience through collaboration and best practice sharing.
Research Volunteers and Assistance Needed
Help researchers find the cause and a cure for juvenile myositis by volunteering for these important studies.
Pioneering JM Care – Integrating Research With a Multidisciplinary Approach to Care
Dr. Jessica Turnier of the University of Michigan / Mott’s Children’s Hospital is dedicated to creating new directions for JM research and wider perspectives on how it is treated. About the University of Michigan, she states, “When I came to Michigan, there were a lot of myositis patients, and I just developed a really strong connection with those patients.”
2024 Cure JM January Symposium
Recently, the Cure JM Clinical Care Network hosted our first virtual symposium of 2024, “Juvenile Dermatomyositis – Advances in Clinical Care, Basic Research, and Translational Studies.” World-leading researchers and clinicians presented sessions on various topics with the primary goal of enhancing the overall patient and provider experience through collaboration and best practice sharing.
Affordable and Accessible Treatments for JM
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.
Embedded Behavioral Health Care in a Center of Excellence
A recently published study on integrating mental health care into a pediatric rheumatology specialty clinic, supported by the Cure JM Foundation, concluded that the need for mental health care is great and despite the challenges, with the coordination of various stakeholders, it is possible. Published in Frontiers, the principal authors were Dr. Susan Shenoi, a pediatric […]
Quarterly JM Medical News
The Cure JM Foundation produces a quarterly newsletter with the latest news, educational opportunities, and research updates about Juvenile Myositis.
Clinician Drive
Cure JM is an organization of parents, patients, and clinicians whose mission is to fund JM research, care, and support. We offer peer-support for every member of the family to help them thrive in their daily life with JM, comply with medication instructions, and connect with other families. We invite all clinicians of pediatric or […]
Published Research Studies and Abstracts Supported by Cure JM
There are a number of published studies about juvenile myositis. Browse this list of over 100 published research studies and abstracts.
10th Annual Cure JM Medical Symposium
The 10th Annual Cure JM Medical Symposium in partnership with Duke University happened May 13th, 2023, virtually, with presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best practice clinical care in juvenile dermatomyositis. For clinicians, researchers, and healthcare professionals unable to attend the event, we are honored to share […]
How Important is Exercise for JM Patients While on the Path to Recovery and Remission?
Juvenile myositis patients and parents of children with JM often ask how important exercise is while on the path to recovery and remission.
Protected: 2024 Juvenile Myositis Treatment Considerations
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Mental and Emotional Health FAQ for Caregivers
Why is emotional/mental health important to our JM kids? Where can I find out more about mental health issues for our JM kids? Where can I learn more about how JM influences anxiety and depression? Where can I learn more about the signs of anxiety and depression in kids and teens? Where can I get […]
Myositis and You
This comprehensive guide to juvenile dermatomyositis features over 450 pages with contributions from over 80 experts and medical professionals.
Transitioning Care From Pediatric Rheumatology to Adult Care
Dr. Sadun is a pediatric and adult rheumatologist at Duke University, a Cure JM Center of Excellence. She recently presented at the Global Conference on Myositis (GCOM) on transitioning care from pediatric rheumatology to adult care.
2022 Cure JM Medical Symposium
Juvenile Dermatomyositis: Advances in Basic Research, Translational Studies and Clinical care. Hosted by Duke University and Cure JM Foundation. March 12th, 2022.
Juvenile Myositis Educational Video
This video provides an overview of juvenile myositis for families newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM).