The Cure JM Foundation produces a quarterly newsletter with the latest news, educational opportunities, and research updates about Juvenile Myositis. Please click below to read past issues of the Quarterly Medical Newsletter. September 2022
Thursday, June 29–Sunday, July 2, 2023 • Washington, DC The Cure JM Family Conference is back! Join families from around the country to learn about the latest treatment and research advances to share in our hope and progress. 🎈Receive the latest updates from world-renowned researchers and physicians, including Cure JM’s Medical Advisory Board. 🎈Connect with other […]
Sue Maillard, Clinical Specialist Physiotherapist in Pediatric Rheumatology and Musculoskeletal Pain Juvenile myositis patients and parents of children with JM often ask how important exercise is while on the path to recovery and remission. That question was recently addressed beautifully at the Global Conference on Myositis presentation by physical therapist Sue Maillard, a foremost expert, clinical […]
Rebecca E. Sadun, MD, PhD Dr. Sadun is a pediatric and adult rheumatologist at Duke University, a Cure JM Center of Excellence. She recently presented at the Global Conference on Myositis (GCOM) on transitioning care from pediatric rheumatology to adult care. Dr. Sadun notes several depressing statistics relating transition to adult care: Health outcomes for […]
Two-Part Workshop: Session Two Builds Upon Session One Cure JM Foundation in collaboration with Children’s Hospital of Colorado, is proud to offer this two-part workshop to pediatric rheumatologists and other providers. CME status will be offered as well. Co-sponsors include: The Hospital for Sick Kids of Toronto; Duke University Hospital; Seattle Children’s Hospital; Dr. Susan […]
A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms can change over time.
In speaking with JM families, we’ve identified seven “best practices” that are absolutely crucial when you, your child and family are battling juvenile myositis.
Example images of JM symptoms including calcinosis, skin rashes, gottron papules, lipodystrophy, heliotrope eyelids, plaquenil reactions, and steroid effects.
This comprehensive guide to juvenile dermatomyositis features over 450 pages with contributions from over 80 experts and medical professionals.
Progress and Prognosis in Juvenile Dermatomyositis, Juvenile Dermatomyositis: A 20-year Retrospective Analysis of Treatment and Clinical Outcomes, Juvenile Dermatomyositis: A Case Study, and others.
There are a number of published studies about juvenile myositis. Browse this list of over 100 published research studies and abstracts.
Drs. Kaveh Ardalan, Andrea Knight and Alison Manning discuss juvenile myositis’ impact on mental health.
Hear directly from the researchers behind two exciting new treatments for juvenile myositis. Learn details of the new treatments and what these drugs could mean for you and your child with JM.
Juvenile Dermatomyositis: Advances in Basic Research, Translational Studies and Clinical care. Hosted by Duke University and Cure JM Foundation. March 12th, 2022.
This video provides an overview of juvenile myositis for families newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM).
We recommend that mental health assessment and treatment options be an integral part of comprehensive care for children, adolescents, and adults with juvenile myositis.
Besides the normal turmoil of adolescence, having a diagnosis of juvenile myositis can present you with more stress due to changes in body image, medical visits, medicines, etc.
With Dr. Megan Curran and Dr. Hanna Kim
In order to understand how our families cope with mental health, we collaborated with Andrea Knight MD MSCE, an expert in the autoimmune and mental health fields.
Cure JM has created resources and connections for over 4,000 patients and families in 40 different countries—including regional JM family support representatives throughout the U.S.
Help researchers find the cause and a cure for juvenile myositis by volunteering for these important studies.
Kids with JDM experience depression and anxiety at 2-3 times a higher rate than their peers. We hope that by outlining the common signs and symptoms of depression and anxiety, you are better able to support your children.
As the parent of a newly diagnosed child, you might feel overwhelmed and worried. These are normal reactions. You might want, and need support, from others who have been, or still are, on this same journey.
Do you know the warning signs of depression and anxiety? Has your child had a mental/emotional health assessment? Here are some resources for you, your child, and other family members.