Mental and Emotional Health FAQ for Caregivers

Why is emotional/mental health important to our JM kids? Where can I find out more about mental health issues for our JM kids? Where can I learn more about how JM influences anxiety and depression? Where can I learn more about the signs of anxiety and depression in kids and teens? Where can I get […]

The Mosaic of Mental Health Workshop Trainings

The first two workshops for the Mosaic of Mental Health series for pediatric rheumatologists and other providers occurred on October 13 and 27, 2022. These two-hour workshops were sponsored by Cure JM, hosted by the Children’s Hospital of Colorado, and offered Continuing Education credits. More than 90 people registered for both sessions, including physicians, nurses, […]

Treatment Plans for Juvenile Myositis

Doctor with parent and juvenile myositis patient.

A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms can change over time.

Signs and Symptoms of Juvenile Myositis

Example images of JM symptoms including calcinosis, skin rashes, gottron papules, lipodystrophy, heliotrope eyelids, plaquenil reactions, and steroid effects.

Six Best Practices for the Newly Diagnosed

Two ladies discussing Juvenile Myositis Research

In speaking with JM families, we’ve identified seven “best practices” that are absolutely crucial when you, your child and family are battling juvenile myositis.

Myositis and You

This comprehensive guide to juvenile dermatomyositis features over 450 pages with contributions from over 80 experts and medical professionals.

Quarterly JM Medical News

The Cure JM Foundation produces a quarterly newsletter with the latest news, educational opportunities, and research updates about Juvenile Myositis. Please click below to read past issues of the Quarterly Medical Newsletter. September 2022

How Important is Exercise for JM Patients While on the Path to Recovery and Remission?

Sue Maillard, Clinical Specialist Physiotherapist in Pediatric Rheumatology and Musculoskeletal Pain Juvenile myositis patients and parents of children with JM often ask how important exercise is while on the path to recovery and remission. That question was recently addressed beautifully at the Global Conference on Myositis presentation by physical therapist Sue Maillard, a foremost expert, clinical […]

Transitioning Care From Pediatric Rheumatology to Adult Care

Rebecca E. Sadun, MD, Ph.D. Dr. Sadun is a pediatric and adult rheumatologist at Duke University, a Cure JM Center of Excellence. She recently presented at the Global Conference on Myositis (GCOM) on transitioning care from pediatric rheumatology to adult care. Dr. Sadun notes several concerning statistics relating transition to adult care: Dr. Sadun reports […]

The Mosaic of Mental Health: A Workshop for Pediatric Rheumatologists and Other Providers

Two-Part Workshop: Session Two Builds Upon Session One Cure JM Foundation in collaboration with Children’s Hospital of Colorado, is proud to offer this two-part workshop to pediatric rheumatologists and other providers. CME status will be offered as well. Co-sponsors include: The Hospital for Sick Kids of Toronto; Duke University Hospital; Seattle Children’s Hospital; Dr. Susan […]

2022 Cure JM Medical Symposium

Juvenile Dermatomyositis: Advances in Basic Research, Translational Studies and Clinical care. Hosted by Duke University and Cure JM Foundation. March 12th, 2022.

Juvenile Myositis Educational Video

This video provides an overview of juvenile myositis for families newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM).

Understanding Second-Line Treatments and Side Effects

Overall, treating JM aims to treat an overactive immune system. Ways to treat an inappropriately overactive immune system include the following: immunosuppression, or reducing the activity of the immune system, which comes with a risk of infection, and immunomodulation, or reducing the activity of the immune system. Medications for initial treatment or induction include steroids, […]

Cure JM Foundation Highlights

Cure JM has created resources and connections for over 4,000 patients and families in 40 different countries—including regional JM family support representatives throughout the U.S.

Signs of Depression and Anxiety in Children and Teens

Kids with JDM experience depression and anxiety at 2-3 times a higher rate than their peers. We hope that by outlining the common signs and symptoms of depression and anxiety, you are better able to support your children.

Juvenile Myositis Research Links

Three little kids holding a sign that says "Hope"

Progress and Prognosis in Juvenile Dermatomyositis, Juvenile Dermatomyositis: A 20-year Retrospective Analysis of Treatment and Clinical Outcomes, Juvenile Dermatomyositis: A Case Study, and others.