This informational presentation was created for families with children newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM), the most common forms of juvenile myositis (JM).
It provides an overview of the disease and what to expect through doctor, patient and family interviews.
Practical tips on how to navigate your child’s school system. Presented by Michelle Best (special education and mental health advocate) and Sue Carpenter (special education resource specialist teacher).
Building friendships with others in the JM community can be difficult. Since JM is a rare disease, medical common ground might be a state away.
We recommend that mental health assessment and treatment options be an integral part of comprehensive care for children, adolescents, and adults with juvenile myositis.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.
