This informational presentation was created for families with children newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM), the most common forms of juvenile myositis (JM).
It provides an overview of the disease and what to expect through doctor, patient and family interviews.
Second-line treatments refer to options beyond steroids and methotrexate. They are designed to manage JM while reducing reliance on those medications. We understand that adding new treatments to your child’s regimen can be intimidating. However, rest assured that your doctor has carefully considered the benefits and risks of each option to design the best treatment plan for your family.
Since it is Rare Disease Month, we would like to take a moment and shine the spotlight on some of our amazing JM warriors.
Kids with JDM experience depression and anxiety at 2-3 times a higher rate than their peers. We hope that by outlining the common signs and symptoms of depression and anxiety, you are better able to support your children.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.