This informational presentation was created for families with children newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM), the most common forms of juvenile myositis (JM).
It provides an overview of the disease and what to expect through doctor, patient and family interviews.
There is no excerpt because this is a protected post.
The questions about what to do before and post-IVIg to prevent side effects come up often. We know that IVIg can be a very beneficial treatment for JDM, yet it is not without potential side effects. Please read further to minimize the event’s trauma and prevent side effects, e.g., nausea, severe headaches, etc.
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.
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