Research Volunteers and Assistance Needed

Three Research Volunteers

Help researchers find the cause and a cure for JM by volunteering for these important studies. Please contact for further information.

Complete the Online PLAY Survey

This study uses an online questionnaire to learn how JDM affects physical activity in children and adults with JDM. 

Who should participate? Anyone with a diagnosis of JDM who is 5-30 years old living in the USA or Canada. If you are younger than 18 years old, your parent or guardian will need to fill out the questionnaire for you. 

We are also interested in having healthy siblings or friends without JDM of the same birth gender and close in age complete the questionnaire as well so we can study differences between the two groups.

View Printable Flyer Here

Learn More & Enroll

Patient Registration

Cure JM Foundation created a Patient Registry to help build a database of Juvenile Dermatomyositis and Juvenile Polymyositis patients. Please join today and help propel research toward JM breakthroughs and, ultimately, a cure.

Register Now

Will Your Child Benefit From Telemedicine?

Parents and patients are requested to share their opinion on juvenile dermatomyositis telemedicine visits.

The purpose of the survey is to better understand the benefits and challenges of receiving JDM care via telemedicine.

Take the Survey

Please Complete This Survey on COVID-19’s Impact on JM Patients

Researchers at the Children’s Hospital at Montefiore, led by Dr. Dawn Wahezi, are trying to discover more about how the pandemic has affected patients.

Please complete this survey if you are a:

  • Parent of a JM patient who is 21 years old or younger
  • Patient age 18-21

Take the Survey

Urgently Needed: Myorisk Study

Currently enrolling patients with juvenile dermatomyositis or polymyositis who have tested positive for Jo1 or other anti-synthetase autoantibodies within the first two years of diagnosis. For the MYORISK study, patients and controls can enroll from home without traveling to Bethesda. Adam Schiffenbauer, MD, is the Principal Investigator, and Lisa G. Rider, MD, is the Associate Investigator on this study. Please call Nastaran Bayat, the study coordinator, for more information or to enroll. Nastaran Bayat can be reached directly at 301.451.2348 or
You can also enroll by calling 800.411.1222.
Download a Flyer
Click Here for More Information

Healthy Friends and Family Members Needed

Doctors at the National Institutes of Health (NIH) are researching to better understand the environmental risk factors that may result in myositis. We are looking for healthy adults and children willing to participate in the MYORISK Study as control participants.
Your participation will include the following:
• Completing a single clinic visit
• Completing surveys
• Sending in a house dust sample
• Providing a blood sample
Compensation is available.

Contact: 800.411.1222 • TYY: 866.411.1010 •

Wanted: Patients with Juvenile Dermatomyositis, Adult Dermatomyositis, or Lupus


Either within 12 months of exposure to the COVID-19 infection or 2nd dose of vaccine OR patients who have had no exposure to COVID-19 infection or vaccine.

Study Details:
Patients need to be seen at the NIH Clinical Center in Bethesda, Maryland, and return 12 months later for re-evaluation. Patients we have seen previously in our NIH research studies are of great interest for this study.

The study requires history and physical, clinical disease assessment, questionnaires, blood work where many tubes are drawn, and an EKG which can be completed on the first day. For interested patients, a blood vessel reactivity study can be scheduled, which requires a second day for the visit.

Also of interest is enrolling healthy control subjects with no exposure to COVID-19 infection or vaccine unrelated to patients with these autoimmune conditions.

Office of Patient Recruitment
800.411.1222 800.877.8339 TTY/ASII
Ask for study #000207-AR

Premature Atherosclerosis in Juvenile Dermatomyositis

Study of Premature Atherosclerosis in Juvenile Dermatomyositis conducted at the Children’s Hospital at Montefiore, Bronx, NY. Currently enrolling patients age 2-21 with a diagnosis of JDM. To be eligible patients cannot be currently using medications that alter lipid metabolism or endothelial function (including lipid lowering agents), be a smoker or have another chronic illness (other than JDM), Please call (718) 696-2405.

More Information

Children with juvenile dermatomyositis (JDM) may be at increased risk of early heart disease due to risk factors including high cholesterol, abnormalities with blood sugar, high blood pressure, limited physical activity, chronic inflammation and the medications that they take. In addition, patients with JDM often have inflammation in their blood vessels which may cause the blood vessels to function improperly. Researchers have found that dysfunctional blood vessels may be one of the first signs of early heart disease. Although it is rare, involvement of the heart and heart attacks have been reported as causes of death in cases of children and adults with dermatomyositis.

This study will use a safe ultrasound technique to examine the function of the blood vessels in children with JDM. Risk factors will be examined to determine if we can identify which ones may cause the greatest risk of early heart disease in these children. With the support of Cure JM and the CARRA network, we plan to perform an additional study to examine these risk factors in a large population of children with JDM and how we can prevent heart disease in these young children.

The long-term goal of our research is to identify which patients with JDM may be at the highest risk of early heart disease and to determine if medications and dietary changes may help to prevent the development of early heart disease. In addition, the information gained from this study regarding the association between various risk factors and early heart disease increases physician awareness and monitoring of these risk factors in children with JDM. Finally, by demonstrating this safe ultrasound technique may be used as a measure of the very first signs of heart disease in children with JDM, we plan to provide physicians with a screening tool for pediatric patients with identifiable risk factors.

Study details:


This study will be conducted at the Children’s Hospital at Montefiore, Bronx, New York.

Principal Investigator

Dr. Dawn Wahezi, MD, MS

Contact #


Eligible Participants

Children, adolescents, and young adults ages 2-21 with a diagnosis of JDM.

Exclusion Criteria

(1) diagnosis of a chronic illness other than JDM
(2) current use of medications that alter lipid metabolism or endothelial function, including lipid-lowering agents
(3) currently smoking

Endopat Testing

The patient sits in a reclining chair propped in a comfortable position with their hands at heart level. The Endo-PAT probe is placed gently on the fingertip, and flexible tubing connects the finger probe to the machine. Baseline measurements are recorded over five minutes. Then a blood pressure cuff is inflated for five minutes, followed by rapid deflation. Measurements will be recorded for at least five minutes after deflation. The patient’s other arm serves as a control assessment. Prior evaluation of discomfort associated with this procedure resulted in a pain score of 1 on the Wong-Baker Faces Pain Scale.

Traveling with JM

Planning a trip or vacation can be challenging, especially when you have a child with juvenile myositis. With spring break and summer break just around the corner, the pressure might be even greater. However, at Cure JM, we want to help ensure that you and your child can enjoy all the delights of a vacation with minimal stress.

A Grandparent Spotlight – Anita

Cure JM recently had the pleasure of interviewing a remarkable individual who hails from Canton, Ohio, and brings a wealth of experience and love to her family. With a vibrant history spanning over five decades of marriage, three daughters, and a rich tapestry of grandchildren and great-grandchildren, Anita Mottice’s journey is as inspiring as it is heartwarming. As a retired nurse and devoted wife, Anita shares her profound connection with her family, particularly her grandchild Sydney, who has been diagnosed with Juvenile Myositis (JM).

GCOM 2024 Round Up

Recently, Cure JM’s Jim Minow was able to attend the Global Conference for Myositis. This conference was not only informational, but was a most impressive day for Cure JM. The conference brings together leading myositis researchers from around the world to share results and collaborate on future projects leading to better care and improved treatments for our JM kids.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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