Mental and Emotional Health FAQ for Caregivers

FAQ Graphic

Why is emotional/mental health important to our JM kids?

  • Listen to and watch Dr. Andrea Knight, Dr. Kaveh Ardalan, and Dr. Alison Manning discuss the impact of JM on JM kids. Quality of Life is crucial to our kids’ well-being. The mental and physical aspects are not separate. https://www.youtube.com/watch?v=p59cPxCB-P8&t=9s 

Where can I find out more about mental health issues for our JM kids?

  • Here is a link to many resources on our Cure JM website.
  • Here is the page for finding resources in your community and other coping skills issues on the Cure JM website.
  • Here is more information about how to get help and resources to consider, e.g., psychologists, psychiatrists, social workers, telemedicine, medications, support groups, etc.

Where can I learn more about how JM influences anxiety and depression?

Where can I learn more about the signs of anxiety and depression in kids and teens?

  • Here is information on signs of anxiety and depression 

Where can I get emotional support as a caregiver?

  • Cure JM provides quarterly parent/caregiver support groups online. Check with Suzanne Edison, Mental Health Coordinator, for dates and sign-ups. suzanne.edison@curejm.org 
Three kids in dark blue Cure JM shirts holding a hope sign

Cure JM Foundation Literature

The following brochures, handouts and posters are available for online viewing and printing. If you need professionally printed copies for an event, please contact us.

Jim’s 2024 Resolutions

Each January, I share with our community a few personal New Year’s resolutions for the year ahead. I believe these resolutions help us keep a keen focus on the priorities that matter most—better treatments, better care, and a cure for JM.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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