Mental and Emotional Health FAQ for Caregivers

FAQ Graphic

Why is emotional/mental health important to our JM kids?

  • Listen to and watch Dr. Andrea Knight, Dr. Kaveh Ardalan, and Dr. Alison Manning discuss the impact of JM on JM kids. Quality of Life is crucial to our kids’ well-being. The mental and physical aspects are not separate. 

Where can I find out more about mental health issues for our JM kids?

  • Here is a link to many resources on our Cure JM website.
  • Here is the page for finding resources in your community and other coping skills issues on the Cure JM website.
  • Here is more information about how to get help and resources to consider, e.g., psychologists, psychiatrists, social workers, telemedicine, medications, support groups, etc.

Where can I learn more about how JM influences anxiety and depression?

Where can I learn more about the signs of anxiety and depression in kids and teens?

  • Here is information on signs of anxiety and depression 

Where can I get emotional support as a caregiver?

  • Cure JM provides quarterly parent/caregiver support groups online. Check with Suzanne Edison, Mental Health Coordinator, for dates and sign-ups. 

The Potential of JAKs in Fighting JM

In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.

Peer Support

Peer Support

Cure JM offers a variety of family and peer support resources and programs for parents, children, teens, and young adults who are affected by juvenile

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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