Myositis and You

“This gem of a book is a great resource to educate, remove some of the fears, and provide hope for anyone faced with living with this disease.”

John H. Klippel, MD
Former President and CEO, Arthritis Foundation

Receive a free digital copy of the book by joining Cure JM here.

Cure JM Foundation funded the first book ever published about juvenile myositis: Myositis and You.

Co-edited by one of our founders, this comprehensive guide features over 450 pages with contributions from over 80 experts and medical professionals. Myositis and You is available through amazon.com.

By reading this book, you will:

  • Learn what juvenile myositis (JM) is and how to explain it to children and teens
  • Understand the symptoms of JM, tests used to diagnose it, and how to find medical help
  • Find strategies to help cope with JM as a family
  • Understand treatment options and how health professionals track your child’s progress
  • Discover a number of resources to assist you in your journey

Proceeds from the sale of this book will help fund further research into juvenile myositis.

The Potential of JAKs in Fighting JM

In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.

The Potential of CAR-T Therapy in Myositis.

The Very Real Potential of CAR-T Therapy in Myositis

We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).

What we heard was more than promising—it was astounding.

What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar.

Helping Parents & Kids When They Express High Emotional Distress

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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