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Cure JM Foundation Staff

James Minow

James Minow

James Minow

Executive Director

James Minow brings more than 30 years of nonprofit experience in executive management and fundraising to Cure JM Foundation. He served as the Chief Development Officer at the Foundation Fighting Blindness from 2005 to 2014, where he created and implemented programs that doubled annual revenues to $35 million. This funding has supported clinical trials that actually restored vision to the blind.

Before joining the Foundation Fighting Blindness, Jim held leadership roles at nonprofits across the country, working closely with patient, physician, and research communities to rapidly expand research programs, leading to better treatments and cures.

In all of Jim’s leadership roles, he has created and spearheaded many annual giving programs, events, major gifts, and planned giving programs that have led to each organization’s ongoing success. 
He has worked closely with patient, physician, and research communities to rapidly expand research programs, leading to better treatments and cures.

Jim is a graduate of the University of California, Santa Barbara and now resides in Olney, MD. He has two grown children, Brandon and Carson.  Jim’s personal interests include historic preservation, including the restoration of his 1876 home.  An aviation enthusiast, Jim owns and flies a Beechcraft Bonanza whenever he can find the time.

Jim looks forward to strengthening the Juvenile Myositis research program, to find better treatment options and ultimately a cure.

Andrew Heaton

Dr. Heaton

Andrew Heaton, Ph.D.

Chief Scientific Officer

Dr. Heaton brings a 30-year career in pharmaceutical discovery, development, and translational studies to Cure JM, and most recently served as the CEO and President of Heaton-Brown Life Sciences and Novogen North America. Dr. Heaton, ushered several oncology compounds from the laboratory through Phase I, II and III clinical trials.

As CSO, Dr. Heaton serves as Cure JM’s science and research leader, proactively driving the growth and effectiveness of Cure JM's grants and clinical research program. He serves as key staff to Cure JM's Research Committee and Medical Advisory Board, providing strategic oversight, guidance, and leadership in executing Cure JM’s Research Priorities.

Dr. Heaton is the senior author on over 100, globally granted-patents, covering a wide range of molecular architectures and diseases and has published multiple papers in peer-reviewed scientific journals.

Dr. Heaton received his Bachelor of Science degree from the University of Tasmania, his doctorate from James Cook University of North Queensland, his MBA from Melbourne Business School, and completed a sabbatical at Imperial College, London.

He currently lives in Florida.

Malloy Family

The Malloy Family

Shannon Malloy

Development and Operations Manager

Shannon Malloy has been with Cure JM since 2013 and manages Cure JM’s fundraising and internal operations programs, including the regional chapter and walk programs, volunteer engagement, annual Holiday Challenge, National Leadership Council, family fundraising events, and other events.

Shannon received her B.A. in Economics and International Studies from the University of Kansas.

She began her career in marketing at Intel where she managed operations, revenue, and demand forecasting for a complex and critical business segment. She then transitioned to Dell where she worked in procurement, managing operations for two strategic supplier relationships.

Shannon lives outside of Seattle with her husband Rich and two sons. In their spare time they enjoy reading, hiking, gardening, and traveling to the Oregon Coast.

Contact Shannon at .

Claire Johnston

Claire Johnston

Claire Johnston

Communications Manager

Claire is a content creator and communications strategist with a strong focus on data, testing and audience research. She served as a writer and analyst at the U.S. Department of State's Office of Innovative Engagement and launched the award-winning social media programs at the American Society of Clinical Oncology (ASCO). While at ASCO, she was a frequent, national presenter on social media topics in medicine, was a named author on five published research papers, a scientific abstract, and a research letter in JAMA Oncology. After some time as a director at a digital agency, she is thrilled to return to healthcare-focused, cause-driven work.

A Kentucky native, Claire graduated from the George Washington University with an MA in Strategic Public Relations from the Graduate School of Political Management. She is located in Washington, D.C.

Contact Claire at .

The Alvord Family

The Alvord Family

Lauren Griffiths Alvord

Walk Strong to Cure JM® Program Manager for Western and Southern Regions

Lauren Griffiths Alvord came to Cure JM through the Intel Corporation Encore Fellows Program, a program where Intel retirees work for a nonprofit organization while receiving a stipend from Intel. Lauren chose to work at Cure JM because of her friendship with Mason Smedley and his family. For many years, Lauren had been a supporter of Cure JM through the Smedley family and had participated in many Cure JM fundraising events, including the Smedley Family's annual Kids’ Fest in Hillsboro, OR.

Lauren is Cure JM’s Program Manager for the Walk Strong to Cure JM® program. With annual walks being held in cities across the United States, the Walk Strong® program is Cure JM’s signature fundraising event, having raised over $500,000 in its first year.  Learn more at www.curejm.org/walkstrong.

Lauren brings over 30 years of Human Resources and project management experience from Intel Corporation to her work at Cure JM. She attended California State University, Chico where she studied Human Resources Management and Economics.

Lauren lives in California with her husband and two young sons. Contact Lauren at .

Simonetta D'Onofrio

Simonetta D’Onofrio

Simonetta D’Onofrio

Walk Strong to Cure JM® Program Manager for Northeastern and Midwestern Regions

Simonetta D’Onofrio joined the Cure JM Staff in 2018 as a Program Manager for Cure JM’sWalk Strong to Cure JM® events. With annual walks being held in cities across the United States, the Walk StrongWalk Strong to Cure JM® program is Cure JM’s signature fundraising event, having raised over $500,000 in its first year. Learn more at www.curejm.org/walkstrong.

Simonetta’s background is in social work, business, and volunteerism and joins Cure JM from the ALS Association. Her experience includes working in non-profits, hospitals, for-profit organizations, and government agencies. She graduated from The University of Maryland, College Park where she studied Psychology and then attended The University of Maryland, Baltimore for her graduate studies in Social Work. Simonetta has been involved in Cure JM since her son Marco was diagnosed with JDM in 2013. Having participated in many Cure JM events and fundraisers, Simonetta stepped forward as the chair of the Inaugural Walk StrongWalk Strong to Cure JM® D.C. in 2016. The InauguralWalk StrongWalk Strong to Cure JM® D.C. was held in June 2017 and was a great success.

Simonetta lives in the D.C. Metro area with her family. Contact Simonetta at .

Beth Barrer

Beth Barrer

Beth Barrer

Fundraising and Financial Data Management Program Manager

Beth Barrer came to Cure JM through the Intel Corporation Encore Fellows Program. Beth chose to work at Cure JM because of her friendship with Mason Smedley and the Smedley family.

Beth is the Program Manager for Cure JM's Fundraising and Financial Data Management Program.

Beth brings a wealth of experience to her role at Cure JM, including over a decade of Intel Corporation project management experience. She attended the University of Oregon where she received a Master's Degree in Information Systems.

Beth lives in Oregon where she enjoys hiking and spending time in the outdoors. Contact Beth at .

Karen Sanguinetti

Karen Sanguinetti

Karen Sanguinetti-Birrer

Administrative Assistant

Karen is the Administrative Assistant at Cure JM, supporting the Chief Science Officer and Research Program, Executive Director and fundraising activities.

Karen brings over 25 years of Human Resources and program management experience from Intel Corporation to her work at Cure JM.

Karen lives in California. In her spare time she enjoys gourmet cooking, music, traveling and spending time with her family and friends.

Contact Karen at .