Join Cure JM and receive invitations to our monthly Town Halls.
Our monthly Town Halls provide an open forum to let your voice be heard! We provide a platform for dialogue between families and JM experts on topics important to you. By joining, you will connect with leading physicians and researchers on breaking updates, hear inspiring patient stories, and learn about new programs. The Town Hall is your direct link to connecting and participating in the programs that are driving our mission forward! Join us today to be a force in our progress.
Hear from various speakers on topics of interest to Cure JM families, including information on the JDM basics, new treatments, the latest research updates, and other support for JM families.
Register now for the July “Ask the Doc” Town Hall on July 29, 2024 at 1:00 PM EST. Join Dr. Angela Chun for expert guidance on setting treatment goals. Dr. Chun will host a Q&A session, offering valuable insights into key considerations for establishing treatment goals, essential topics to discuss with your doctor, and the benefits of having clear treatment objectives.
In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.
With summer underway, we are honored to share our latest “Ask the Doc” Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children’s Hospital, share the importance of sun protection for JM patients.
Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know
We are honored to share this insightful presentation and Q&A on the importance of exercise and nutrition in treating juvenile myositis with Dr. Brian Feldman of The Hospital for Sick Children and the Cure JM Clinical Care Network.
What role does exercise and nutrition play in JM treatment? When should JM patients be cleared for exercise? What effects do exercise and nutrition have on disease outcomes?
Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.
To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.