A Peek Inside Progress
In January, Cure JM presented a town hall on the achievements of 2023 and goals for 2024.
Join Cure JM and receive invitations to our monthly Town Halls.
Our monthly Town Halls provide an open forum to let your voice be heard! We provide a platform for dialogue between families and JM experts on topics important to you. By joining, you will connect with leading physicians and researchers on breaking updates, hear inspiring patient stories, and learn about new programs. The Town Hall is your direct link to connecting and participating in the programs that are driving our mission forward! Join us today to be a force in our progress.
Hear from various speakers on topics of interest to Cure JM families, including information on the JDM basics, new treatments, the latest research updates, and other support for JM families.
Join the April Town Hall to hear from an esteemed panel of four about IVIG, including key tips for a successful IVIG from VP of Patient Advocacy Michelle Vogel, MPA at IV Solutions RX, Heather Tory, MD, MPH, CPPS, a Pediatric Rheumatologist and Associate Chief Quality and Patient Safety Officer at Connecticut Children’s, Laurel Cherwin, BSN, RN, IgCN an immunology Clinical Nurse Educator, Medical Affairs Octapharma and Kristine Alderfer, Cure JM Board President and JM mom.
April 22, 2024 01:00 PM Eastern Time (US and Canada)
Click Here to Join- https://us02web.zoom.us/meeting/register/tZUucuCrrD0qGNFcZg1FBZgitviRNHvHofTA
In January, Cure JM presented a town hall on the achievements of 2023 and goals for 2024.
In October, Cure JM had two speakers give an update about drug discovery in juvenile myositis.
Cure JM Mental Health Coordinator, Suzanne Edison discusses ways to help your kids and yourself cope living with JM. Learn about emotional and behavioral challenges that often come with chronic diseases like juvenile myositis and ways to help patients and caregivers cope.
With summer underway, we are honored to share our latest “Ask the Doc” Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children’s Hospital, share the importance of sun protection for JM patients.
Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know
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