Join Cure JM and receive invitations to our monthly Town Halls.
Our monthly Town Halls provide an open forum to let your voice be heard! We provide a platform for dialogue between families and JM experts on topics important to you. By joining, you will connect with leading physicians and researchers on breaking updates, hear inspiring patient stories, and learn about new programs. The Town Hall is your direct link to connecting and participating in the programs that are driving our mission forward! Join us today to be a force in our progress.
Hear from various speakers on topics of interest to Cure JM families, including information on the JDM basics, new treatments, the latest research updates, and other support for JM families.
Unase a nosotros para escuchar al Dr. Juan C. Torres-Sanchez. JDM 101: Lo Que Los Padres Necesitan Saber – Preparate cone el conocimiento esencial para enfrentar la dermatomyositis juvenil (JDM). Esta guia ofrece los padres la información clave necesaria para comprender, manejar y abogar por la salud de su hijo. October 10th at 8:00 PM Eastern
Join us on October 23rd at 2:00 PM Eastern to hear Dr. Brian Feldman on how to manage your journey with JM by embracing exercise as a powerful and essential component of treatment. This presentation will cover how exercise supports strength, resilience, and overall well-being.
Join us on October 25th at 2:00 PM Eastern for an in-depth town hall and live Q&A where we will unravel the complexities of calcinosis in juvenile myositis (JM). Dr. Christian Lood and Dr. Adam Schiffenbauer will provide a comprehensive overview of the latest advancements in treatment and share new research findings.
November 5th, 2024- Town Hall: Choosing the Best Path: A Guide to 2nd Line Treatments and New Treatments on the Horizon https://us02web.zoom.us/meeting/register/tZAkf-2qrDgsEtS1JXXEswHXYJNfcaHXnZyE
December 2nd, 2024- Town Hall: Unlock the Secrets Within: Inside the Cell – Discovering the Key to New Treatments and Cures https://us02web.zoom.us/meeting/register/tZYkcOmgrj4oHdR30AHcG5ZwJCnbUzBu5pYy
January 22, 2025- Town Hall: Looking Ahead to 2025: A Year of Hope, Progress, and Advancement for Cure JM https://us02web.zoom.us/meeting/register/tZAvdu2hrDIiE9UMDDAbbpgepaKbR1TB4tG4
February 13, 2025- Town Hall: Early Detection, Better Results: Tips for Detecting and Navigating JDM Flares https://us02web.zoom.us/meeting/register/tZIkf-GvqDovGtCnc1e1S2iFkxhvpxS1BDSZ
This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.
In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.
This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.
Hear from a panel of four experts about IVIG, including important tips for a successful IVIG journey.
The panel will discuss a variety of must-know information on successful IVIG treatment days, navigating the system, at-home vs. outpatient options, pre & post-treatment checklists, and more.
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