Tapering Medication

Cure JM hosted a special Town Hall featuring Dr. Kaveh Ardalan, Co-Director of the Duke Children’s Myositis Center, a Cure JM Center of Excellence. The session focused on the critical topic of tapering medications in the treatment of juvenile myositis. Families gained practical insights on managing infusions, flares, and daily medications, and had the opportunity to ask questions in a supportive, community-focused environment. The session offered both education and encouragement for those navigating the complex process of medication tapering.

Anita and granddaughters at walk 2024

Grandparent Giving

Supporting Cure JM: A Grandparent’s Guide to Making a Difference As grandparents, your love and support are the bedrock of your family’s strength. You provide

Vamorolone FAQ

Vamorolone FAQs in JM

With the looming FDA approval of the drug vamorolone in Duchenne muscular dystrophy, there are questions surrounding the drug’s status for trials in juvenile myositis. We have consulted with JM experts on the potential implications of a pending approval for the drug in another disease and what this currently means for JM patients living in the U.S.

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Cure JM supports families, patients, and the juvenile myositis research community.

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