Tapering Medication

Cure JM hosted a special Town Hall featuring Dr. Kaveh Ardalan, Co-Director of the Duke Children’s Myositis Center, a Cure JM Center of Excellence. The session focused on the critical topic of tapering medications in the treatment of juvenile myositis. Families gained practical insights on managing infusions, flares, and daily medications, and had the opportunity to ask questions in a supportive, community-focused environment. The session offered both education and encouragement for those navigating the complex process of medication tapering.

DIY: The Carlson’s Ride Strong

Our first feature sheds light on the Carlson family’s (Grandparents of Emma Weiss) cycling campaign to raise awareness and funds for JM kids like their

Volunteer Spotlight- Kristine Alderfer

Kristine has been involved in Cure JM through volunteer roles for many years, and her involvement has become a family affair, as her daughter Katherine is a patient advocate for others with the disease.

Walking Strong, Empowered by unity

Walking Strong – Empowered by Unity

Like other teens new to the JM journey, Catie Beth Caldwell and Madi Cook were two individuals who felt alone at the beginning of their journeys. Catie Beth was diagnosed just before the Covid-19 pandemic took hold of the world as we knew it. With this came feelings of isolation and loneliness. These emotions were commonplace for many teens but were only compounded by teens new to a rare disease diagnosis. These first years of the “new normal” were difficult to navigate.

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