Cure JM 2025: The Road Ahead

Hear a Critical Update from our Executive Director and learn more about WHY and HOW we Walk Strong Together. Featuring Cure JM Executive Director, Jim Minow, Director of Development and Community Engagement, Shannon Malloy, Board Member and Southern California Walk Chair, Zack Harrison, and Chapter & Walk Manager, Nicole Ryba.

Vamorolone FAQ

Vamorolone FAQs in JM

With the looming FDA approval of the drug vamorolone in Duchenne muscular dystrophy, there are questions surrounding the drug’s status for trials in juvenile myositis. We have consulted with JM experts on the potential implications of a pending approval for the drug in another disease and what this currently means for JM patients living in the U.S.

Community Advisory Board

Cure JM’s Community Advisory Board plays a vital role in representing JM families from diverse backgrounds to help support this cutting edge research project. Cure JM CAB members are the link between the greater JM community and the project’s research team, working together to ensure that the needs of the entire JM community are understood and addressed.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.