The Importance of Exercise in Juvenile Myositis

This presentation features Sue Maillard, a specialist physiotherapist at Great Ormond Street Hospital, London, who explores the importance of different types of exercise in managing juvenile myositis (JM).

With over 30 years of experience in Pediatric Rheumatology Physiotherapy, Sue has a specialist interest in JM and has completed research on the safety of exercise in juvenile dermatomyositis (JDM).

Sue currently leads a physiotherapy team that provides an inpatient rehabilitation program for children and reviews and manages home treatment programs.

DIY: Joy and Liv’s Pickleball for a Purpose

Inspired by her daughter Liv and a love of pickleball, Joy created an annual tournament to support Cure JM. What began as a simple idea

Exercise and Juvenile Myositis

In this presentation, Dr. Laura Tasan explains the importance of exercise for JM patients. Since JM children suffer from endurance and fatigue issues, exercise for

Jim’s 2024 Resolutions

Each January, I share with our community a few personal New Year’s resolutions for the year ahead. I believe these resolutions help us keep a keen focus on the priorities that matter most—better treatments, better care, and a cure for JM.

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