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The Importance of Exercise in Juvenile Myositis

This presentation features Sue Maillard, a specialist physiotherapist at Great Ormond Street Hospital, London, who explores the importance of different types of exercise in managing juvenile myositis (JM).

With over 30 years of experience in Pediatric Rheumatology Physiotherapy, Sue has a specialist interest in JM and has completed research on the safety of exercise in juvenile dermatomyositis (JDM).

Sue currently leads a physiotherapy team that provides an inpatient rehabilitation program for children and reviews and manages home treatment programs.

Vamorolone FAQ

Vamorolone FAQs in JM

With the looming FDA approval of the drug vamorolone in Duchenne muscular dystrophy, there are questions surrounding the drug’s status for trials in juvenile myositis. We have consulted with JM experts on the potential implications of a pending approval for the drug in another disease and what this currently means for JM patients living in the U.S.

2027 Cure JM Family Conference

We are excited to announce that the Cure JM National Family Conference will be back in 2025! Join us for three days with world-class JM researchers, engaging sessions for all, and social time to connect with new friends. The 15th Annual Cure JM National Family Conference is taking place June 27th -June 29th, 2023, in Chicago, Illinois.

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Membership is free and we’ll connect you with a network of support, encouragement, and resources.

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Cure JM supports families, patients, and the juvenile myositis research community.

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