All Family Resources
All Clinician Resources

JDM 101: Lo Que Los Padres Necesitan Saber

Únase a nosotros para escuchar al Dr. Torres. JDM 101: Lo Que Los Padres Necesitan Saber – Prepárate con el conocimiento esencial para enfrentar la dermatomiositis juvenil (JDM). Esta guía ofrece a los padres la información clave necesaria para comprender, manejar y abogar por la salud de su hijo.

In English: Join us in hearing from Dr. Torres. JDM 101: What Parents Need to Know – Equip yourself with the essential knowledge to navigate juvenile dermatomyositis (JDM). This guide offers parents the crucial information needed to understand, manage, and advocate for their child’s health.

IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

Community Advisory Board

Cure JM’s Community Advisory Board plays a vital role in representing JM families from diverse backgrounds to help support this cutting edge research project. Cure JM CAB members are the link between the greater JM community and the project’s research team, working together to ensure that the needs of the entire JM community are understood and addressed.

Olivia's Story of Hope, photo of family

Olivia’s Story

Olivia is four years old, and she’s been fighting juvenile myositis for almost two years. At the beginning of her treatment, Olivia’s parents, Leah and

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Cure JM supports families, patients, and the juvenile myositis research community.

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