Search Results for: roselty y su novia

Cabaletta Bio Announces Promising Results for CAR-T in Myositis

On October 26, at the world’s largest gathering of rheumatologists, the American College of Rheumatology, Cabaletta Bio unveiled positive new results that could mark a...

Abatacept Trial concludes with favorable results in JM treatment

A clinical trial treating patients with juvenile myositis with the drug abatacept resulted in lower disease activity and clinically significant responses in most patients. The...

Town Hall October 2024, Calcinosis, Christian Lood

Dr. Christian Lood is a professor and researcher who studies autoimmune diseases, focusing on a condition called juvenile myositis (JDM) that affects kids’ muscles and...

GCOM 2024, Executive Director Update
Recently, Cure JM’s Jim Minow was able to attend the Global Conference for Myositis. This conference was not only informational, but was a most impressive...
Parents researching with clinicians
Cure JM is dedicated to finding a cure and better treatments for juvenile myositis (JM) and improving the lives of families affected by JM....
Updates from Jim Minow

Updates from Jim Minow Jim Minow brings more than 30 years of nonprofit experience in executive management and fundraising to Cure JM Foundation. He served...

Doctor with parent and juvenile myositis patient.
A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms...
Early Promising Data Presented in Car-T for Myositis
We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM). What we heard...
Executive Director Update - Jim's Conference Round Up
Cure JM held its first post-COVID Family Conference earlier this summer. The conference was an extraordinary experience for families and leaders on so many levels,...
Cure JM’s Community Advisory Board plays a vital role in representing JM families from diverse backgrounds to help support this cutting edge research project. Cure...
2024 Year in Review GIF, Cure JM

2024 has been a momentous year for life-improving progress in research, clinical care, and empowering support and education. We invite you to join us in...

Chan Zuckerberg Initiative Update. Cure JM Partner Researchers Achieve Three Major Breakthroughs
Last year, Cure JM and a team of collaborative researchers received a prestigious $2 million grant from the Chan Zuckerberg Initiative to advance our understanding...
Juvenile dermatomyositis patient Natalia with Dr. Liebling, JDM researcher
Help researchers find the cause and a cure for juvenile myositis by volunteering for these important studies....

First, a few terms to know when talking about Myositis Specific AutoAntibodies.   So why do we talk about Myositis Specific Autoantibodies?   We know that JDM...

Each January, I share with our community a few personal New Year’s resolutions for the year ahead. I believe these resolutions help us keep a...
Austin Krainz, diagnosed with juvenile dermatomyositis at the age of seven, overcame the challenges of a rare disease with the support of his family and...
Cure JM is dedicated to finding a cure and better treatments for juvenile myositis (JM) and improving the lives of families affected by JM....
Family holding a Cure JM sign on a beach
Cure JM was founded 19 years ago by a small group of volunteers who wanted to change the world for children with a rare disease...
Published Research Studies and Abstracts Supported by Cure JM
There are a number of published studies about juvenile myositis. Browse this list of over 100 published research studies and abstracts....
Dr. Joanna Parkes

Backed by funding from the Cure JM Foundation, scientists at the UK’s Nucleic Acid Therapy Accelerator (NATA) are creating tiny medicines that press the “quiet”...

Researcher discusses chart on wall.
Research is vital to finding better treatments and a cure for juvenile myositis. Cure JM funds research studies through our Cure JM Centers of Excellence...
In January, the Cure JM Clinical Care Network was pleased to invite juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations from...
Rebecca Karsten, Why I Fundraise, Ellory, Giving Tuesday 2024

Rebecca Karsten– “Hello! Welcome to a wonderful community that even though we never wanted to join; we are now so happy to be part of....

Emma's Story of Hope, Giving Tuesday 2024
At 12 years old, Emma's world was turned upside down. An energetic cheerleader who loved spending time with her friends, she suddenly found herself constantly...
Town Hall October 2024, Calcinosis, Christian Lood

At the October 25th Town Hall, Dr. Christian Lood, professor and researcher at the University of Washington and Seattle Children’s Hospital, presented on the topic...

Emotional and Mental Health Information for Medical Providers
We recommend that mental health assessment and treatment options be an integral part of comprehensive care for children, adolescents, and adults with juvenile myositis....
There are Cure JM Chapters all across the United States offering support and opportunities to gather with other JM families in your area. Join an...
Exercise Image with Sue Maillard
Juvenile myositis patients and parents of children with JM often ask how important exercise is while on the path to recovery and remission....
Dr. Sadun is a pediatric and adult rheumatologist at Duke University, a Cure JM Center of Excellence. She recently presented at the Global Conference on...
The Potential of JAKS in Fighting JM
In our June 2024 "Ask the Doc" Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are,...
May Virtual Symposium 2024, Clinicians
The Cure JM Clinical Care Network hosted our second quarterly virtual symposium of 2024, "Juvenile Dermatomyositis - Advances in Clinical Care, Basic Research, and Translational...
Parrish Story of Hope
We would like to introduce a one-of-a-kind, competitive, and determined young man, named Parrish. His story of resiliency and hope is one that will resonate...
Anna Ramsey has lived with juvenile myositis for most of her adolescent and adult life. Over the years Anna has been actively involved in Cure...
Do you know the warning signs of depression and anxiety? Has your child had a mental/emotional health assessment? Here are some resources for you, your...

Spring break should be about fun and relaxation. Sandi and her husband Zack expected their trip to Mexico would be the same. Of course, taking...

“Giving Tuesday is the biggest day of the year at Cure JM. Your participation means a lot to our success!”....
A task that seemed daunting 20 years ago, to change the world for patients diagnosed with juvenile myositis, is now within our reach....
Embedded Behavioral Health Care - in a Center of Excellence

A recently published study on integrating mental health care into a pediatric rheumatology specialty clinic, supported by the Cure JM Foundation, concluded that the need...

Sari's Story of Hope

Sari’s pain began in September of 2018, during gymnastics practice. It started in her shoulder. She didn’t give it much thought. But then it worsened,...

About Juvenile Myositis
Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, are a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its...

Cadence was only 18 months old when she was diagnosed with juvenile dermatomyositis. Her mother took her to their pediatrician’s office multiple times, only for...

FAQ Graphic

Why is emotional/mental health important to our JM kids? Where can I find out more about mental health issues for our JM kids? Where can...

Girl leaning against tree
Kindergarten is about making friends, learning how to count by two’s, and reading Biscuit books. But for Madi, Kindergarten was not so simple....

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