Why Should I Consider Getting a Second Opinion for My JM Child

Town Hall Meeting Sunday September 11, Why I should consider getting a second opinion for my JM Child with Lisa G. Rider and Jeffrey Dvergsten

Learning that your child has Juvenile Myositis may feel overwhelming. Second opinions can confirm a diagnosis, help you understand different treatment options, and review your child’s current treatment plan to ensure it’s the right one for your family.

Featuring:

Dr. Rider is a Pediatric Rheumatologist and Head of the Environmental Autoimmunity Group, National Institute of Environmental Health Science, National Institutes of Health, in Bethesda, Maryland. Dr. Rider is also an esteemed Cure JM Medical Advisory Board member. Since 2008, Dr. Rider has also been a Clinical Professor of Medicine at George Washington University. She sees patients and leads research on juvenile myositis in the Cure JM Center for Excellence and at the National Institute of Health as part of her research studies.

Dr. Dvergsten is a pediatric rheumatologist and physician-scientist who has built his clinical and research career around juvenile myositis. He co-founded Duke’s Myositis Clinic, a designated Cure JM Center of Excellence. He also created and manages a repository for research biospecimens from children with inflammatory myopathies.

What is Juvenile Myositis?

Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its own cells and tissues.

Understanding Second line treatments and side effects

Understanding Second-Line Treatments and Side Effects

In this presentation, Drs. Curran and Kim explain second-line medications that should be considered after the initial treatment period with induction of treatments already discussed—either the patient cannot tolerate these medications or is still active.

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

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