Michelle Best
Giving Tuesday 2023
“Giving Tuesday is the biggest day of the year at Cure JM. Your participation means a lot to our success!”.
Affordable and Accessible Treatments for JM
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.
Advocating for Your Child: Navigating School and Community
Practical tips on how to navigate your child’s school system. Presented by Michelle Best (special education and mental health advocate) and Sue Carpenter (special education resource specialist teacher).
Parent Ambassadors for Cure JM’s Giving Tuesday Holiday Challenge
Your Participation Means a Lot to Our Success We are pleased to recognize our Parent Ambassadors for Cure JM’s Giving Tuesday Holiday Challenge. The Parent Ambassadors have stepped into a leadership role to help make the biggest day of the year a huge success for our kids. We are so grateful to all our ambassadors […]
IVIG: What Families Need to Know
Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.
Town Halls
Our monthly town halls were created to provide an open forum to let your voice be heard! We strive to create a platform that provides open dialogue between families and JM experts on topics important to you. By joining our town halls, you can connect with leading doctors and researchers on the breaking updates, hear inspiring stories from patients, and new programs from our leadership team. The town hall is your direct link to downloading and participating in the programs that are driving our mission forward! Join us today to be a force in our progress.
Hear from a variety of speakers on topics of interest to Cure JM families, including information on the JDM basics, new treatments, the latest research updates, and other support for JM families.
Centers of Excellence
Cure JM Centers of Excellence are recognized for the extraordinary care they provide to juvenile myositis patients and families.