All Family Resources
All Clinician Resources

IVIG: What Families Need to Know

In this session, learn about IVIG (immunoglobulin therapy administered by vein):

  • What is IVIG?
  • When do doctors consider IVIG as a treatment?
  • What can you and your child expect during an infusion?
  • What are the tips for the day of the IVIG treatment?
  • What do you need to know about insurance?

This session features:

  • Dr. Fatma Dedeoglu of Boston Children’s Hospital
  • Huub Kreuwel Ph.D., of Octapharma Plasma
  • Patient advocate Michelle Vogel, of CSI Pharmacy

DIY: The Carlson’s Ride Strong

Our first feature sheds light on the Carlson family’s (Grandparents of Emma Weiss) cycling campaign to raise awareness and funds for JM kids like their

Sari's Story of Hope

Sari’s Story

Sari’s pain began in September of 2018, during gymnastics practice. It started in her shoulder. She didn’t give it much thought. But then it worsened,

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