IVIG: What Families Need to Know

In this session, learn about IVIG (immunoglobulin therapy administered by vein):

What is IVIG?
When do doctors consider IVIG as a treatment?
What can you and your child expect during an infusion?
What are the tips for the day of the IVIG treatment?
What do you need to know about insurance?

This session features:

Dr. Fatma Dedeoglu of Boston Children’s Hospital
Huub Kreuwel Ph.D., of Octapharma Plasma
Patient advocate Michelle Vogel, of CSI Pharmacy

Emotional and Mental Health Resources: Teens and Young Adults

Besides the normal turmoil of adolescence, having a diagnosis of juvenile myositis can present you with more stress due to changes in body image, medical visits, medicines, etc.

Resources for Patients Who Have Pain

Here are some resources and recommendations for ways of addressing pain. These come from pediatric rheumatologists and other medical providers/researchers.

Stretch Out- an educational resource and exercise video of children and their parents

An Educational Resource and Exercise Video for Children and Their Parents

This video features stretching exercises that are an important part of rehabilitation for JM patients. The video was created for Muscular Dystrophy patients, but is still applicable for JM patients.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

IVIG: What Families Need to Know

Emotional and Mental Health Resources: Teens and Young Adults

Resources for Patients Who Have Pain

An Educational Resource and Exercise Video for Children and Their Parents

Join Cure JM

Families

Physicians

Cure JM

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