IVIG – What Parents and Caregivers Need to Know

Town Hall April 2024, IVIG, Tory, Cherwin, Vogel, Alderfer

Hear from a panel of four experts about IVIG, including important tips for a successful IVIG journey.

Presenters include: VP of Patient Advocacy Michelle Vogel, MPA at IV Solutions RX, Heather Tory, MD, MPH, CPPS, a Pediatric Rheumatologist and Associate Chief Quality and Patient Safety Officer at Connecticut Children’s, Laurel Cherwin, BSN, RN, IgCN an immunology Clinical Nurse Educator, Medical Affairs Octapharma and Kristine Alderfer, President, Cure JM Board of Directors.

The panel will discuss a variety of must-know information on successful IVIG treatment days, navigating the system, at-home vs. outpatient options, pre & post-treatment checklists, and more.

Why I Walk- Sammie Fish

Why I Walk: Steps Toward a Cure with Sammie Fish

Sammie Fish was 14 when juvenile dermatomyositis (JDM, a rare form of juvenile myositis (JM) changed her life in 2017. A doctor’s warning that she might never reach remission, tied to a lifetime of medication, shook her world. But Sammie, now 21, didn’t back down. Today, she’s a college grad, a new teacher in her dream job, and Co-Chair of Cure JM’s Ohio Chapter alongside her mom. She walks for herself, for kids like her, and for a cure. That’s why hundreds of Cure JM families and friends across the nation join Walk Strong, because every step pushes us toward a JM-free future

Randy and three other grandmothers at conference

Grandparent Council

What is the Grandparent Council?  We are grandparents of a grandchild living with juvenile myositis.  Our mission as grandparents is to learn about juvenile myositis and support

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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