Why Should I Consider Getting a Second Opinion for My JM Child

Town Hall Meeting Sunday September 11, Why I should consider getting a second opinion for my JM Child with Lisa G. Rider and Jeffrey Dvergsten

Learning that your child has Juvenile Myositis may feel overwhelming. Second opinions can confirm a diagnosis, help you understand different treatment options, and review your child’s current treatment plan to ensure it’s the right one for your family.

Featuring:

Dr. Rider is a Pediatric Rheumatologist and Head of the Environmental Autoimmunity Group, National Institute of Environmental Health Science, National Institutes of Health, in Bethesda, Maryland. Dr. Rider is also an esteemed Cure JM Medical Advisory Board member. Since 2008, Dr. Rider has also been a Clinical Professor of Medicine at George Washington University. She sees patients and leads research on juvenile myositis in the Cure JM Center for Excellence and at the National Institute of Health as part of her research studies.

Dr. Dvergsten is a pediatric rheumatologist and physician-scientist who has built his clinical and research career around juvenile myositis. He co-founded Duke’s Myositis Clinic, a designated Cure JM Center of Excellence. He also created and manages a repository for research biospecimens from children with inflammatory myopathies.

Why I Walk- Sammie Fish

Why I Walk: Steps Toward a Cure with Sammie Fish

Sammie Fish was 14 when juvenile dermatomyositis (JDM, a rare form of juvenile myositis (JM) changed her life in 2017. A doctor’s warning that she might never reach remission, tied to a lifetime of medication, shook her world. But Sammie, now 21, didn’t back down. Today, she’s a college grad, a new teacher in her dream job, and Co-Chair of Cure JM’s Ohio Chapter alongside her mom. She walks for herself, for kids like her, and for a cure. That’s why hundreds of Cure JM families and friends across the nation join Walk Strong, because every step pushes us toward a JM-free future

Town Hall June 2024, Thorington, Turnier, Emotional Distress

Helping Parents & Kids When They Express High Emotional Distress

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.