This video features stretching exercises that are an important part of rehabilitation for JM patients. The video was created for Muscular Dystrophy patients but still applies to JM patients.
Please check with your doctor before starting any stretching or exercise program.
With your financial support, Cure JM is proud to have funded Fionnuala McMorrow, a Postgraduate Research Student in the Department of Life Sciences at the University of Bath, to embark on a critical research project. Fionnuala’s team analyzed blood samples from the UK to investigate two specific biomarkers (anti-CCAR1 and anti-Sp4) recently identified in U.S. patients with JDM and related conditions
With summer underway, we are honored to share our latest “Ask the Doc” Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children’s Hospital, share the importance of sun protection for JM patients.
Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know
Parenting a child with a rare disease comes with unique challenges—but you don’t have to navigate them alone. Join us for a powerful and practical
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
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