Parent and Teen Mentors

Feeling Lost After a Myositis Diagnosis? Find Support with Cure JM Mentors!

Cure JM is a strong community – a “Family of Families” – and we know how overwhelming a new myositis diagnosis can be. That’s why we offer our Cure JM Mentor Program, connecting you with experienced individuals who have walked a similar path and come through healthy and thriving!

Empowered Families, Free Support: That’s the Cure JM Promise. We care deeply about every family facing myositis. That’s why all our services are completely free of charge.

Here’s how our mentors can help:

  • Offer encouragement and hope: Our mentors understand the challenges you face because they’ve been there. They’ll share their stories of overcoming myositis and thriving.
  • Provide practical guidance: Get valuable tips and tricks for managing this condition, from our real-life experience.
  • Fill in the knowledge gaps: Learn what our mentors wish they knew when they were first diagnosed.
  • Ask your questions: Learn from others how to cope with medication side effects, nutrition, exercise, school accommodations, and more.

The program is flexible to fit your needs:

  • Connect on your terms: Reach out to your mentor by text, social media message (DM), email, or phone call – whichever you feel most comfortable with.

Ready to find your mentor?

  • Visit our website: Join at www.curejm.org/join to get started.
  • Text us: Simply send a message to 202-596-6267 to get started.

Don’t face myositis alone. Find support and guidance with Cure JM Mentors!

“My parent mentor was a lifesaver! Having someone to text with questions about our new reality with myositis made all the difference. I’m so grateful!” Rachel, Mom to a Teen with Myositis (April 2024)


Find Your Perfect Match: Cure JM’s Tailored Mentor Programs

Cure JM understands that everyone’s journey with myositis is unique. That’s why we offer a diverse range of mentor programs to connect you with someone who truly gets it.

Here’s who you can connect with:

  • Parent Mentors: Our nationwide network pairs you with experienced parents who have walked a similar path.
    • Mom and Dad Mentors: Get support specific to your role, whether you’re a mother or father facing myositis with your child.
  • Teen and Young Adult Mentors: Find someone who understands your teenage or young adult experience through our social media groups and dedicated Teen/Young Adult Mentors.
  • Grandparent Mentors: Connect with grandparents who share the challenges and joys of supporting a grandparent with myositis.

¿Habla Español?  Tenemos mentores que hablan español para conectarte con alguien que te entienda perfectamente. Contacta a betsy.leon@curejm.org para saber más.  

Join today – there’s no obligation! Visit https://www.curejm.org/join to get started

Cure JM: “A Family of Families,” dedicated to helping every family thrive!

Walk Strong 2025 March Town Hall

Cure JM 2025: The Road Ahead

Hear a Critical Update from our Executive Director and learn more about WHY and HOW we Walk Strong Together. Featuring Cure JM Executive Director, Jim Minow, Director of Development and Community Engagement, Shannon Malloy, Board Member and Southern California Walk Chair, Zack Harrison, and Chapter & Walk Manager, Nicole Ryba.

Cure JM Video Resources

Video Resources

At Cure JM, we want all our information to be accessible to you and your family. We have compiled all of our video resources in one place for you to view at your leisure.

Walking Strong, Empowered by unity

Walking Strong – Empowered by Unity

Like other teens new to the JM journey, Catie Beth Caldwell and Madi Cook were two individuals who felt alone at the beginning of their journeys. Catie Beth was diagnosed just before the Covid-19 pandemic took hold of the world as we knew it. With this came feelings of isolation and loneliness. These emotions were commonplace for many teens but were only compounded by teens new to a rare disease diagnosis. These first years of the “new normal” were difficult to navigate.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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