Twice the Strength, Twice the Hope: Olivia and Maddie’s Story of Hope

olivia and maddie story of hope

When Olivia and Maddie were diagnosed with juvenile dermatomyositis at just two and a half years old, their family was told something no parent expects to hear — that it was “impossible” for twins to have JDM. And yet, here they were. Two tiny girls, facing a rare disease that even their doctors had never seen in twins.

Four years later, Olivia and Maddie are seven years old, full of grit, joy, and the kind of resilience that takes your breath away. Through infusions, appointments, and the ups and downs of this disease, their smiles have never dimmed. They show up for life with the same determination they bring to their favorite sport — soccer — where they run, play, and remind everyone watching what strength really looks like.

Their big brother Jaxon, now eight, is right beside them, cheering them on and sharing their love of the game. Together, these three have built a team of their own — one defined by courage, laughter, and the unshakeable bond of siblings who refuse to let JDM write their story.

Olivia and Maddie are proof that even when the odds say “impossible,” hope has other plans.

My Mission, My Impact

We are continually moved by the creativity and unwavering passion that our families exude in their DIY fundraisers that make our mission possible. My Mission,

Unveiling the Future of Hope, Malloy and Heaton, September Town Hall 2024

Unveiling the Future of Hope

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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