In this town hall, you can hear the latest updates on Cure JM research and discover what these advancements mean for you and your family. This session covered groundbreaking research developments, the progress of ongoing studies, and how these findings are paving the way for better treatments and improved quality of life for those affected by juvenile myositis. Whether you’re a patient, caregiver, or supporter, this is your chance to get informed and understand how these research efforts are bringing us closer to a cure.
Erin and Madi’s Story: Finding Hope at the Cure JM Family Conference
In February 2023, Erin Hicks and her daughter Madi faced a life-altering moment. After a visit to the National Institutes of Health in Seattle, Madi, a vibrant 12-year-old soccer player from Kansas City, Missouri, was diagnosed with juvenile dermatomyositis (JDM). “We walked out feeling overwhelmed and lost,” Erin recalls. Research fueled panic as Madi’s condition worsened, her energy fading on the soccer field. Hope was slipping away.
