March 2026 Town Hall – JM 101: Everything we Know about Juvenile Myositis in 2026

April 1 Town Hall 2026

Watch this recorded Town Hall to learn more about juvenile myositis diagnosis and treatment. In this session, Dr. Stacey Tarvin shares insights into best practice care, what families can expect along the treatment journey, and the current understanding of this disease. This discussion is designed to help families feel more informed and confident as they navigate care decisions.


About the Speaker

Dr. Stacey Tarvin is the Program Director for the Pediatric Rheumatology Fellowship and the Section Education Director for Pediatric Rheumatology at Indiana University and Riley Children’s Hospital. She serves in numerous leadership roles across the pediatric rheumatology community and is the Chair of Cure JM’s Clinical Care Network. Most importantly, she is a dedicated physician and parent, known at home as “Dr. Mom,” raising three energetic children with her husband.

Early Promising Data Presented in Car-T for Myositis

Early Promising Data in CAR-T for Myositis

We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).

What we heard was more than promising—it was astounding.

What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar.

IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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