A Guide to 2nd Line Treatments and New Treatments on the Horizon

Hear from Dr. Susan Shenoi on how to unlock the knowledge you need to make informed decisions about 2nd line treatments and the promising new therapies on the horizon. In this town hall, you will understand the next steps in your treatment journey, and be empowered with the latest insights and options.


Dr. Shenoi’s town hall details:

A basic understanding of JM – Dr. Shenoi describes myositis as a pizza topping analogy. Myositis is the base and the autoantibodies are the toppings. This analogy paints the picture of the many different disease courses in juvenile dermatomyositis and how unique they are.

Immune System Pathways – Dr. Shenoi provides a graphic of the immune system’s makeup that is really interesting and shows how different drugs target different pathways.

Combination Therapy – Since there is not an exact science as to which immune pathway to target, Dr. Shenoi and other JM experts believe that “combination therapy” is ideal for treatment. For example, abatacept might target the T-cell path, while Rituximab targets the B-cells. The combination of drugs targeting multiple immune system paths creates better outcomes.

Who should know these options – The primary goal of adding 2nd or 3rd line treatment options is to reduce and eliminate prednisone (steroids) as it comes with long term side effects. These options will hopeful allow for more control of the juvenile myositis without steroids and optimize a patients quality of life!

    Required Minimum Distribution, Giving

    Required Minimum Distribution

    You can send your Required Minimum Distribution (RMD) to a charity using a strategy called aQualified Charitable Distribution (QCD). A QCD allows individuals aged 70½

    Parrish Story of Hope

    Parrish’s Story

    We would like to introduce a one-of-a-kind, competitive, and determined young man, named Parrish. His story of resiliency and hope is one that will resonate with many of us in the Cure JM family. Parrish faced many challenges in his journey with JM, but found hope and support in his family and the Cure JM community. We are pleased to now share his experience to help others facing the same struggles during Myositis Awareness Month.

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