Helping Parents & Kids When They Express High Emotional Distress

Town Hall June 2024, Thorington, Turnier, Emotional Distress

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Why I Walk- Sammie Fish

Why I Walk: Steps Toward a Cure with Sammie Fish

Sammie Fish was 14 when juvenile dermatomyositis (JDM, a rare form of juvenile myositis (JM) changed her life in 2017. A doctor’s warning that she might never reach remission, tied to a lifetime of medication, shook her world. But Sammie, now 21, didn’t back down. Today, she’s a college grad, a new teacher in her dream job, and Co-Chair of Cure JM’s Ohio Chapter alongside her mom. She walks for herself, for kids like her, and for a cure. That’s why hundreds of Cure JM families and friends across the nation join Walk Strong, because every step pushes us toward a JM-free future

Volunteer Spotlight- Kristine Alderfer

Kristine has been involved in Cure JM through volunteer roles for many years, and her involvement has become a family affair, as her daughter Katherine is a patient advocate for others with the disease.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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