Volunteer Spotlight- Kristine Alderfer

As a member of the Cure JM community, you have likely heard the name Kristine Alderfer, a devoted parent of a teen with JM who has become a leader, serving as the President of our Board of Directors.

Kristine has been involved in Cure JM through volunteer roles for many years, and her involvement has become a family affair, as her daughter Katherine is a patient advocate for others with the disease. For over a decade, the Alderfer family has volunteered their time and talents to deliver a lasting impact on our mission. The family has hosted countless JM research fundraisers, including Christmas Shop for a Cure, Evening Under The Stars, and Cure JM marathons.

Most recently, Kristine has taken her leadership to new heights, serving as the Volunteer Chair of Cure JM’s National Family Conference.

We would like to thank the Alderfer family for carrying out the work that supports our community. Click below to hear about Kristine and Katherine’s rare disease journey.

Read Kristine’s Story

The Carpenters turn Lemons to Lemonade!

The Carpenter family hopes their efforts will raise awareness for Cure JM and bring hope to families like theirs.

The community went above and beyond in showing their support for the lemonade stand.

The 1000 cups with lids the Carpenters ordered quickly cleared out as more and more lemonade was sold!

Parrish’s Story

We would like to introduce a one-of-a-kind, competitive, and determined young man, named Parrish. His story of resiliency and hope is one that will resonate with many of us in the Cure JM family. Parrish faced many challenges in his journey with JM, but found hope and support in his family and the Cure JM community. We are pleased to now share his experience to help others facing the same struggles during Myositis Awareness Month.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.