Health Insurance Tips and Links

Health Insurance Tips and Links

Tips: Dealing with your Insurance Company

When calling your insurance company, always take notes on conversations, especially the date, time, person’s name and direct telephone number, and record/call# assigned to the phone call.

Attach to disputed bill and EOB (Insurance Explanation of Benefits). Ask to speak to a supervisor if progress needs to be made. Consider assigning a case manager or ombudsman to help deal with pre-approvals or problematic denials—it gives you one consistent contact person.

Other options include having the Human Resources Director contact the Insurance Broker through which the medical insurance was purchased to help advocate your case or give tips on your appeal.

Links: Insurance Claims Denials & Appeals

Dealing with denied medical insurance claims? Complex Child E-Magazine has a great article, “Writing Winning Insurance Appeal Letters,” which can be downloaded here.

“How To Appeal A Health Claim Denial.” This is a helpful article from on an issue too many JM families experience.

The PAF’s mission is to provide effective mediation and arbitration services to assist patients with chronic or life-threatening illnesses with Medical Debt Crises, Insurance Access Issues, and Job Retention Issues. This is a fantastic resource!

For Access/Approval Related to IVIG

IGLiving Magazine is an online and print magazine for the IVIG community

FFF Enterprises

External Insurance Appeals

Medical Insurance Issues? Appealing Claims? Know the contact information for the Insurance Commissioner’s Office for your state – the regulatory office for insurance – and the laws for your state.

Kaiser Family Foundation has a dedicated webpage “A Consumer’s Guide to Handling Disputes with Your Employer or Private Insurance – State-by-State External Review Programs”. This is for information about the Appeal Process reaching the external, state level.

Other Helpful Insurance Links

Connecting Kids to Insurance Coverage

“Your Health Plan & HIPPA…Making the Law Work for You.”

“Top 10 Ways to Make Your Health Benefits Work for You” — a helpful link by the Employee Benefits Security Administration of the Dept. of Labor covers HIPAA, COBRA, etc.

The Ultimate Guide to Drug Discounts

Changes in Healthcare Law

Key provisions in health care reform went into effect recently. Do you know how the new laws will impact you & your family? Healthcare Law Update – July/August 2022

If you have a new insurance policy or purchased one on or after 09/23/2010, there are requirements to receive preventive services with no out of pocket costs. Please click here for more information on preventive care.

Know how Changes in Healthcare law and provisions affect you

To enhance the understanding of insurance and healthcare reform changes following the passage of the Patient Protection and Affordable Healthcare Act.

Assistance With Medical Bills

The Patient Advocacy Foundation Co-Pay Relief (CPR) provides direct financial assistance to qualified patients, assisting them with prescription drug co-payments their insurance requires relative to their diagnosis. CPR call counselors work directly with the patient as well as with the provider of care to obtain necessary medical, insurance and income information to advance the application in an expeditious manner. has a webpage listing helpful web links for “Assistance with Paying for Medical Care & Procedures”, “Financial Aid for Medical Treatments”, “Assistance for Paying for Medications”, “Assistance for Insurance Premiums.

The Casey Cares Foundation website includes links to helpful resources and tools regarding financial aid.

NeedyMeds is a non-profit organization founded as a resource of information about patient assistance programs (PAPs) and developed into a database of PAPs, disease-based assistance, gov’t programs & other types of assistance programs.

RxAssist offers a comprehensive database of patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need.

The Potential of JAKs in Fighting JM

In our June 2024 “Ask the Doc” Town Hall, Dr. Julie Paik joins in a Q&A session to shed light on what JAK inhibitors are, how they work in JM, when parents might consider discussing JAKs as a treatment option, and the pros and cons of their use.

The Potential of CAR-T Therapy in Myositis.

The Very Real Potential of CAR-T Therapy in Myositis

We expected to hear promising news about the potential for CAR-T therapy to treat myositis at the Global Conference on Myositis (GCOM).

What we heard was more than promising—it was astounding.

What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar.

Helping Parents & Kids When They Express High Emotional Distress

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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