Resources for Patients Who Have Pain
Here are some resources and recommendations for ways of addressing pain. These come from pediatric rheumatologists and other medical providers/researchers.
Products and Resources To Protect Your Child From the Sun
In collaboration with leading experts, we have curated a list of products that can help protect your child from the UV rays that come from the sun and even harmful artificial light.
Health Insurance Tips and Links
Tips and links for dealing with insurance claims, denials and appeals, making phone calls, changes in health care law, help with medical bills, and more.
Emotional and Mental Health Resources for Experienced Parents and Caregivers
Do you know the warning signs of depression and anxiety? Has your child had a mental/emotional health assessment? Here are some resources for you, your child, and other family members.
Alex Hackney’s Story
Despite battling juvenile dermatomyositis (JDM) as a child, Alex Hackney never envisioned becoming a marathon runner, let alone completing prestigious races like the Chicago and New York Marathons. With over 15 years of grappling with JDM, Alex recently completing her third marathon and found closure and perspective in Chicago.
A Grandparent Spotlight – Anita
Cure JM recently had the pleasure of interviewing a remarkable individual who hails from Canton, Ohio, and brings a wealth of experience and love to her family. With a vibrant history spanning over five decades of marriage, three daughters, and a rich tapestry of grandchildren and great-grandchildren, Anita Mottice’s journey is as inspiring as it is heartwarming. As a retired nurse and devoted wife, Anita shares her profound connection with her family, particularly her grandchild Sydney, who has been diagnosed with Juvenile Myositis (JM).
Rare Disease Warriors
Since it is Rare Disease Month, we would like to take a moment and shine the spotlight on some of our amazing JM warriors.
Nine Ways Grandparents Can Support Their Family After Diagnosis
We understand how difficult it is when your grandchild is diagnosed with juvenile myositis. We have compiled these tips from other JM grandparents on how to best support a grandchild, their siblings, and the family.
GCOM 2024 Round Up
Recently, Cure JM’s Jim Minow was able to attend the Global Conference for Myositis. This conference was not only informational, but was a most impressive day for Cure JM. The conference brings together leading myositis researchers from around the world to share results and collaborate on future projects leading to better care and improved treatments for our JM kids.