Helpful tips from other JM families on topics like reducing anxiety during treatments, shots and blood draws, dentist visits, sun shades, journaling, and more!
Many students with juvenile dermatomyositis or juvenile polymyositis need some special accommodations at school. And although each student is different, here is a list of some common accommodations that other Cure JM families have found helpful in the past.
Practical tips on how to navigate your child’s school system. Presented by Michelle Best (special education and mental health advocate) and Sue Carpenter (special education resource specialist teacher).
The main role of a Child Life Specialist is to help relieve the stress and anxiety that children feel when they become patients; whether in a doctor/dentist office, hospital, emergency room, hospice or any other setting in which children are served.
Did you know an average white t-shirt only has a UPF of 7? And that drops to UPF3 when wet? A dark denim shirt can have a UPF of 1700, but how many children would be happy wearing such a heavy fabric on a hot day?
The Social Security and Supplemental Security Income disability programs are the two largest Federal programs providing assistance to people with disabilities.
Informing your child’s school personnel about juvenile myositis is important. Parents have reported a variety of avenues they have taken in order to do this.
Helpful links for government resources such as the Social Security Administration, Social Security Disability Insurance, Supplemental Security Income, and more.
The number of medications used to manage juvenile myositis and its side effects can be overwhelming. Cure JM developed this sample medication chart to help you stay organized.
Tips and links for dealing with insurance claims, denials and appeals, making phone calls, changes in health care law, help with medical bills, and more.
One of the ways you can help your children cope with juvenile myositis is by giving them a sense of control over their doctor visits and treatments.