Affordable and Accessible Treatments for JM
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.
Advocating for Your Child: Navigating School and Community
Practical tips on how to navigate your child’s school system. Presented by Michelle Best (special education and mental health advocate) and Sue Carpenter (special education resource specialist teacher).
Tips from JM Families for JM Families
Helpful tips from other JM families on topics like reducing anxiety during treatments, shots and blood draws, dentist visits, sun shades, journaling, and more!
Q & A With a Child Life Specialist
The main role of a Child Life Specialist is to help relieve the stress and anxiety that children feel when they become patients; whether in a doctor/dentist office, hospital, emergency room, hospice or any other setting in which children are served.
Products and Resources To Protect Your Child From the Sun
In collaboration with leading experts, we have curated a list of products that can help protect your child from the UV rays that come from the sun and even harmful artificial light.
Social Security and Supplemental Security Income Resources
The Social Security and Supplemental Security Income disability programs are the two largest Federal programs providing assistance to people with disabilities.
Government Resources
Helpful links for government resources such as the Social Security Administration, Social Security Disability Insurance, Supplemental Security Income, and more.
Health Insurance Tips and Links
Tips and links for dealing with insurance claims, denials and appeals, making phone calls, changes in health care law, help with medical bills, and more.