What is Juvenile Myositis?

Doctor and young juvenile myositis patient.

Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its own cells and tissues.

Treatment Plans for Juvenile Myositis

Doctor with parent and juvenile myositis patient.

A treatment plan is based on many factors, including the severity and expression of the juvenile dermatomyositis (JDM). Each case is different and the symptoms can change over time.

Six Best Practices for the Newly Diagnosed

Two ladies discussing Juvenile Myositis Research

In speaking with JM families, we’ve identified seven “best practices” that are absolutely crucial when you, your child and family are battling juvenile myositis.

Signs and Symptoms of Juvenile Myositis

Example images of JM symptoms including calcinosis, skin rashes, gottron papules, lipodystrophy, heliotrope eyelids, plaquenil reactions, and steroid effects.

Myositis and You

This comprehensive guide to juvenile dermatomyositis features over 450 pages with contributions from over 80 experts and medical professionals.

Juvenile Myositis 101

A world-renowned pediatric rheumatologist and immunologist tells us what juvenile dermatomyositis (JDM) is, how it is diagnosed, and how it is treated.

Juvenile Myositis Educational Video

This video provides an overview of juvenile myositis for families newly diagnosed with juvenile dermatomyositis (JDM) or juvenile polymyositis (JPM).

Top 10 Tips for JM Families

Parents with child

The first few days, weeks and months after diagnosis are often overwhelming. We hope these ideas help you find ways to organize and support yourself and your child as you begin this new journey.

Cadence’s Story

Cadence was only 18 months old when she was diagnosed with juvenile dermatomyositis. Her mother took her to their pediatrician’s office multiple times, only for covering nurses to misdiagnose her symptoms. “I knew something more was going on—I just did not know what,” says Stephanie, Cadence’s mom. Stephanie described Cadence’s symptoms to a physician co-worker, who […]

Nathanael’s Story

Nathanael was an active 7-year-old. In the summer of 2014, he played baseball under the Southern California sun, and that’s when the rash started. “He started having this weird rash on his legs,” says Maggie, Nathanael’s mom. They brushed it off as allergies and looked for the right cream, assuming it would eventually go away. […]