A Peek Inside Progress

As the New Year rises, a hopeful horizon brightens for Cure JM. It is with great thanks to our Cure JM community for your extraordinary commitment to funding new research as we move into 2024. Celebrate the achievements with us and review our community’s impact and our goals for the new year.

Jim Minow, Executive Director, updates on recent research breakthroughs, new treatment options, and plans to expand Cure JM’s Clinical Care Network.

Andrew Heaton, Chief Scientific Officer, updates families with the latest information on new treatments on the horizon, including deucravacitinib and vamorolone.

Shannon Malloy, Director of Family and Community Engagement, discusses the latest developments in physician education programs, family education and support programs, and our plans for family connections in the coming year.

Click the image above to watch the informative presentation.

Exercise and Juvenile Myositis

In this presentation, Dr. Laura Tasan explains the importance of exercise for JM patients. Since JM children suffer from endurance and fatigue issues, exercise for

Erin and Madi’s Story: Finding Hope at the Cure JM Family Conference

In February 2023, Erin Hicks and her daughter Madi faced a life-altering moment. After a visit to the National Institutes of Health in Seattle, Madi, a vibrant 12-year-old soccer player from Kansas City, Missouri, was diagnosed with juvenile dermatomyositis (JDM). “We walked out feeling overwhelmed and lost,” Erin recalls. Research fueled panic as Madi’s condition worsened, her energy fading on the soccer field. Hope was slipping away.

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Cure JM supports families, patients, and the juvenile myositis research community.

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