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A Peek Inside Progress

As the New Year rises, a hopeful horizon brightens for Cure JM. It is with great thanks to our Cure JM community for your extraordinary commitment to funding new research as we move into 2024. Celebrate the achievements with us and review our community’s impact and our goals for the new year.

Jim Minow, Executive Director, updates on recent research breakthroughs, new treatment options, and plans to expand Cure JM’s Clinical Care Network.

Andrew Heaton, Chief Scientific Officer, updates families with the latest information on new treatments on the horizon, including deucravacitinib and vamorolone.

Shannon Malloy, Director of Family and Community Engagement, discusses the latest developments in physician education programs, family education and support programs, and our plans for family connections in the coming year.

Click the image above to watch the informative presentation.

Shop to Support Cure JM

We have compiled a list of Cure JM items you can purchase, as well as other products, that might help you and your child in their JM journey.

Walking Strong, Empowered by unity

Walking Strong – Empowered by Unity

Like other teens new to the JM journey, Catie Beth Caldwell and Madi Cook were two individuals who felt alone at the beginning of their journeys. Catie Beth was diagnosed just before the Covid-19 pandemic took hold of the world as we knew it. With this came feelings of isolation and loneliness. These emotions were commonplace for many teens but were only compounded by teens new to a rare disease diagnosis. These first years of the “new normal” were difficult to navigate.

Sydney’s Story

Spring break should be about fun and relaxation. Sandi and her husband Zack expected their trip to Mexico would be the same. Of course, taking

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