Upcoming Regional Events and Fundraisers
June
Cure JM Foundation 12th Annual National Family Conference
June 29th - July 1st
Key Bridge Marriott
1401 Lee Hwy
Arlington, VA 22209
(Washington, D.C.Metro Area)
Conference activities begin Friday morning June 29th and will conclude Sunday afternoon July 1st. Activities will include:
- Presentations on the latest JM research and treatments by the JM Medical Community
- Workshops for Caregivers
- Breakout sessions for Moms, Dads, Newly Diagnosed Families, Grandparents and Extended Family Members...
- Special sessions and activities for tweens, teens and young adults
- Kids Fun Camp
- Washington, D.C. Walk Strong to Cure JMTM 2018 National Fundraising Event
CLICK HERE TO VISIT THE CONFERENCE WEBSITE
For questions contact .
July
2nd Annual Washington, D.C. Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Sunday, July 1st
Registration opens at 8:00am, Walk starts at 9:00am
Key Bridge Marriott
1401 Lee Hwy
Arlington, VA 22209
This year's event will be held in conjunction with our National Family Conference, with families coming in from all around North America to participate. More details coming soon!
2nd Annual Cure JM Houston Chapter Family Educational Event
Saturday, July 7th,8:00am - Noon
The Pavilion for Women
4th floor Conference rooms E & F 0475.70 & 0475.80
6651 Main Street
Houston, TX 77030
Join fellow Houston families for a morning of fun, fellowship and learning for the whole family.
JM experts will present and answer audience questions:
| 8:00-8:30 | Breakfast & Social Time |
| 8:30-9:15 | Marietta DeGuzman, MD, Pediatric Rheumatologist — Diagnosis & Treatment: Common Treatments and side-effects |
| 9:15-10:00 | Ankur Kamdar, MD, Pediatric Rheumatologist — Preparing to Transition from Pediatric to Adult Care |
| 10:00-10:45 | William Blaine Lapin, MD, Pediatric Rheumatologist — Living with Disease |
| 10:45-11:15 | Danielle Guttman-Lapin, PhD, School Psychologist — A Psychological Outlook: How to cope as a caregiver and how to help your child or teen cope with disease |
| 11:15-11:30 | Jim Minow, Cure JM Executive Director — The latest developments in JM research and initiatives |
| 11:30- 12:00 | Closing and Social Time |
- Bring the whole family! Kids and teens will enjoy social time and activities in a separate (attached) Kids Fun Room.
- Complimentary food will be served.
Please RVSP to Houston Chapter President Bud Sheffield at .
5th Annual Cowboy Brad Concert for Cure JM
Saturday, July 21, Festivities 4:00pm
YMCA of the Rockies, Hyde Chapel
2515 Tunnel Road
Estes Park, CO
At 4:00pm, families will meet in the shady picnic area at the Hyde Chapel for a picnic, social time, and yard games including gaga ball and washers. The family-friendly concert will be from 7:00pm-8:00pm. RSVP to .
August
Evening Under the Stars with Special Guest Don Middlebrook & The Pearl Divers
Saturday, August 4th, Doors open at 5:00pm, Presentation 6:00pm, Buffet 6:30pm, Band 7:00pm
Spikes Beach and Grill
310 Eastlake Drive
Warsaw, IN
A portion of proceeds from this family event benefit Cure JM Foundation. Event will take place rain or shine! For tickets, contact Randy Jones, (574) 551-2580. Contact for more information.
8th Annual Yard Sale to Cure JM
Friday, August 24th and Saturday, August 25th
Lake Stevens, WA 98258
Items for sale can be dropped off on Thursday. Contact Julie Shevlin for drop off arrangements or any questions at .
September
2nd Annual Massachusetts Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Sunday, September 30th, 10:00am - Noon
The Arboretum at Green Hill Park
50 Skyline Drive
Worcester, MA 01605
Registration opens 9:00am. Walk Festivities begin 10:00am. Contact for more information.
CLICK HERE TO REGISTER OR LEARN MORE
October
3rd Annual Seattle Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Saturday October 6th, 10:00am
Marymoor Park, Marybelle Meadow
6046 West Lake
Sammamish Pkwy NE
Redmond, WA 98052
Registration opens 9:00am. Walk Festivities begin 10:00am. Contact for more information.
CLICK HERE TO REGISTER OR LEARN MORE
2nd Annual New York Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Sunday, October 14th
More information coming soon! Contact to learn more or get involved.
3rd Annual Chicago Cure JM Chapter - Family Educational Event
Saturday, October 27th. 1:00pm - 4:00pm
Ambria College of Nursing
5210 Trillium Blvd.
Hoffman Estates, IL 60192
Join fellow Chicago Chapter families for an afternoon of social time and learning based around the theme Dealing with Juvenile Myositis: The Disease, the Medications, and Life
The speakers are:
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Kaveh Ardalan, M.D., M.S., Attending Physician, Division of Rheumatology and Instructor in Pediatrics, Ann & Robert H. Lurie Children's Hospital of Chicago and Northwestern University Feinberg School of Medicine
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Lura Cartensen, CCLS, Child Life Specialist, Ann & Robert H. Lurie Children's Hospital of Chicago
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Lisa M. Testolin, M.S., R.D., LDN, Registered Dietitian
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Cure JM Executive Director Jim Minow, who will also present an update on the latest JM research and initiatives.
Bring the whole family! Kids and teens will enjoy social time and activities while caregivers attend educational sessions. Complimentary snacks will be served.
To RSVP or learn more, contact or .
2nd Annual Cure JM Minnesota Chapter Family Educational Event
Sunday, October 28th. 11:00am - 1:00pm
University of Minnesota Masonic Children’s Hospital, South Building
Wilf Family Center, on the 2nd/Lobby Floor, room 1 and 2.
2450 Riverside Avenue,
Minneapolis, MN 55454
This event will include complimentary lunch and snacks, kids’ activities, and teen social time and activities.
Colleen Correll, MD, of the University of Minnesota Masonic Children’s Hospital will speak about topics of interest to Cure JM families including:
- What is Juvenile Myositis?
- How do the current treatments work? What do the medications do?
- Which labs are important? What do they measure?
- Flares - what causes them? How do you know if a child/teen is flaring?
- Coping strategies for parents to help their children and teens cope with chronic illness
- What new treatments are on the horizon?
- Audience Q&A
Ann Schular, CCLS, from University of Minnesota Masonic Children’s Hospital Child Life Department, will arm families with information on age-appropriate ways to explain a disease to a child/teen, how to get a child/teen to comply with medication-taking, tips & tricks for the family and caregiver, how to help a child/teen cope with treatments and side effect, and answer audience questions.
Cure JM Executive Director Jim Minow will also present an update on the latest JM research and initiatives including current clinical trials and potential new treatments on the horizon.
Please RVSP to Cure JM Minnesota Chapter President Danielle Harris at .
November
Christmas Shop for Cure JM
November 3rd
Warsaw, IN
Contact for more information.
Would you like to host your own fundraiser to support Cure JM Foundation? Make sure you check out our Fundraising Ideas and Fundraising Guidelines. Email to get started today!
