Upcoming Regional Events and Fundraisers
April
Inaugural Ohio-Western Pennsylvania Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Saturday, April 21st
Schenley Plaza
4100 Forbes Avenue
Pittsburgh, PA
Registration opens 9:00am. Walk Festivities begin 10:00am. Contact for more information.
CLICK HERE TO REGISTER OR GET MORE INFORMATION
2nd Annual Dallas Chapter Family Educational & Social Event
Saturday April 21st, 10:00am - 1:00pm (food will be served)
Heritage Home Owners Association Clubhouse
9536 Courtright Drive
Keller, TX 76244
Join fellow Dallas Chapter Families for our 2nd Annual Family Educational and Social Event. Cure JM Executive Director Jim Minow will present an update on the latest JM research and initiatives including new treatments on the horizon. Bring the whole family! Complimentary food will be served and kids and teens will enjoy social time and activities. Please RVSP to Chapter President John Kara at .
2nd Annual Central Texas Chapter Family Educational & Social Event
Sunday, April 22nd. 2:00pm - 4:00pm
Dell Children's Medical Center
Signe Auditorium
4900 Mueller Blvd.
Austin, TX 78723
Ruy Carrasco, MD will hold a brief Q&A session and present on topics of interest to Cure JM families including What is Juvenile Myositis? How do the current treatments work? What do the medications do? Which labs are important? What do they measure? Cure JM Executive Director Jim Minow will also present an update on the latest JM research and initiatives. Complimentary food will be served. Please RVSP to Central Texas Chapter President Sissy Taylor at .
Inaugural Northern California Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Saturday, April 28th
The Pergola at Lake Merritt
599 El Embarcadero,
Oakland, CA 94610
Registration opens 9:00am. Walk Festivities begin 10:00am. Contact for more information.
CLICK HERE TO REGISTER OR GET MORE INFORMATION
May
2nd Annual Chicago Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Sunday, May 6th
St. James Farm Forest Preserve
Warrenville, IL
Join us for our 2nd annual Walk Strong™ event. Contact with any questions.
PARKING NOTE: Our parking entrance is on the east edge of the preserve. We have the Special Use Site/Pavilion (East Farm) which has a separate entrance. Our entrance can be found on Google Maps by entering “Hoy Ave & Illinois Prairie Path, Warrenville, IL”.
CLICK HERE TO REGISTER OR GET MORE INFORMATION
Inaugural Minnesota Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Saturday, May 19th
University of Minnesota
Coffman Memorial Union
300 Washington Ave SE
Minneapolis, MN 55455
Registration opens 9:00am. Walk Festivities begin 10:00am. Contact for more information.
CLICK HERE TO REGISTER OR GET MORE INFORMATION
2nd Annual Cure JM Family Educational Event Presented by the Pacific Northwest Chapter of Cure JM
Saturday, May 19th, 1:00pm - 4:00pm
Seattle Children’s Hospital
OA.5.340 - Ocean entrance (O), basement level (A), room #5-340
4800 Sand Point Way NE
Seattle, WA 98105
Contact for more information.
Annual Massachusetts Chapter Family Educational Event
Sunday May 20, 12:30pm - 3:00pm
Boston Children’s Hospital, Waltham
9 Hope Ave
Waltham MA 02453
- Fatma Dedeoglu, MD, Attending Physician, Boston Children's Hospital, Assistant Professor, Harvard Medical School, will hold a brief Q&A session and present on topics of interest to Cure JM families including:
- What is Juvenile Myositis?
- How do the current treatments work?
- What do the medications do?
- Which labs are important? What do they measure?
- Cure JM Executive Director Jim Minow will also present an update on the latest JM research and initiatives.
- A complimentary light lunch will be served.
- The entire family is welcome, children and teens will enjoy social time and activities while the parents attend the educational session.
Please RVSP to Massachusetts Chapter Family Outreach Chair Stephanie Brown at .
Massachusetts Chapter Golf Tournament 2018
Monday, May 21st, 7:00AM - 4:00pm
Registration: 7:00am. Tee-off: 7:30am
Country Club of Halifax & Shanks Restaurant
100 Country Club Drive
Halifax, MA 02338
Four Man Best Ball. $125 entry fee provides access to all activities as well as 18-holes of golf, riding cart, lunch, dinner and a chance to win various prizes including a limited membership to Country Club of Halifax! Putting Challenge, Longest Drive, Closest to the Pin, Hole-in-One Shootout.
CLICK HERE TO PURCHASE TICKETS OR SPONSORSHIP OPPORTUNITIES or contact Cure JM Massachusetts Chapter President Chris Bokis at (508) 735-0966 or .
June
Cure JM Foundation 12th Annual National Family Conference
June 29th - July 1st
Key Bridge Marriott
1401 Lee Hwy
Arlington, VA 22209
(Washington, D.C.Metro Area)
Conference activities begin Friday morning June 29th and will conclude Sunday afternoon July 1st. Activities will include:
- Presentations on the latest JM research and treatments by the JM Medical Community
- Workshops for Caregivers
- Breakout sessions for Moms, Dads, Newly Diagnosed Families, Grandparents and Extended Family Members...
- Special sessions and activities for tweens, teens and young adults
- Kids Fun Camp
- Washington, D.C. Walk Strong to Cure JMTM 2018 National Fundraising Event
CLICK HERE TO VISIT THE CONFERENCE WEBSITE
For questions contact .
July
2nd Annual Washington, D.C. Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Sunday, July 1st
Registration opens at 8:00am, Walk starts at 9:00am
Key Bridge Marriott
1401 Lee Hwy
Arlington, VA 22209
This year's event will be held in conjunction with our National Family Conference, with families coming in from all around North America to participate. More details coming soon!
2nd Annual Cure JM Houston Chapter Family Educational Event
Saturday, July 7th,8:00am - Noon
The Pavilion for Women
4th floor Conference rooms E & F 0475.70 & 0475.80
6651 Main Street
Houston, TX 77030
Join fellow Houston families for a morning of fun, fellowship and learning for the whole family.
JM experts will present and answer audience questions:
| 8:00-8:30 | Breakfast & Social Time |
| 8:30-9:15 | Marietta DeGuzman, MD, Pediatric Rheumatologist — Diagnosis & Treatment: Common Treatments and side-effects |
| 9:15-10:00 | Ankur Kamdar, MD, Pediatric Rheumatologist — Preparing to Transition from Pediatric to Adult Care |
| 10:00-10:45 | William Blaine Lapin, MD, Pediatric Rheumatologist — Living with Disease |
| 10:45-11:15 | Danielle Guttman-Lapin, PhD, Pediatric Psychologist — A Psychological Outlook: How to cope as a caregiver and how to help your child or teen cope with disease |
| 11:15-11:30 | Jim Minow, Cure JM Executive Director — The latest developments in JM research and initiatives |
| 11:30- 12:00 | Closing and Social Time |
- Bring the whole family! Kids and teens will enjoy social time and activities in a separate (attached) Kids Fun Room.
- Complimentary food will be served.
Please RVSP to Houston Chapter President Bud Sheffield at .
5th Annual Cowboy Brad Concert for Cure JM
Saturday, July 21, Festivities 4:00pm
YMCA of the Rockies, Hyde Chapel
2515 Tunnel Road
Estes Park, CO
At 4:00pm, families will meet in the shady picnic area at the Hyde Chapel for a picnic, social time, and yard games including gaga ball and washers. The family-friendly concert will be from 7:00pm-8:00pm. RSVP to .
August
Evening Under the Stars
Saturday, August 4th
Warsaw, IN
Contact for more information.
September
2nd Annual Massachusetts Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Sunday, September 30th, 10:00am - Noon
The Arboretum at Green Hill Park
50 Skyline Drive
Worcester, MA 01605
Registration opens 9:00am. Walk Festivities begin 10:00am. Contact for more information.
CLICK HERE TO REGISTER OR LEARN MORE
October
3rd Annual Seattle Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Saturday October 6th, 10:00am
Marymoor Park, Marybelle Meadow
6046 West Lake
Sammamish Pkwy NE
Redmond, WA 98052
Registration opens 9:00am. Walk Festivities begin 10:00am. Contact for more information.
CLICK HERE TO REGISTER OR LEARN MORE
2nd Annual New York Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk
Sunday, October 14th, 2018
More information coming soon! Contact to learn more or get involved.
November
Christmas Shop for Cure JM
November 3rd
Warsaw, IN
Contact for more information.
Would you like to host your own fundraiser to support Cure JM Foundation? Make sure you check out our Fundraising Ideas and Fundraising Guidelines. Email to get started today!
