Upcoming Regional Events and Fundraisers
October
3rd Annual Chicago Cure JM Chapter - Family Educational Event
Saturday, October 27th. 1:00pm - 4:00pm
Ambria College of Nursing
5210 Trillium Blvd.
Hoffman Estates, IL 60192
Join fellow Chicago Chapter families for an afternoon of social time and learning based around the theme Dealing with Juvenile Myositis: The Disease, the Medications, and Life
The speakers are:
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Kaveh Ardalan, M.D., M.S., Attending Physician, Division of Rheumatology and Instructor in Pediatrics, Ann & Robert H. Lurie Children's Hospital of Chicago and Northwestern University Feinberg School of Medicine
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Lura Cartensen, CCLS, Child Life Specialist, Ann & Robert H. Lurie Children's Hospital of Chicago
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Lisa M. Testolin, M.S., R.D., LDN, Registered Dietitian
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Cure JM Executive Director Jim Minow, who will also present an update on the latest JM research and initiatives.
Bring the whole family! Kids and teens will enjoy social time and activities while caregivers attend educational sessions. Complimentary snacks will be served.
To RSVP or learn more, contact or .
Research Volunteers Also Needed: To sign up to participate in a research study at this event, or to learn more, please click here or contact . Advanced sign-up is required.
2nd Annual Cure JM Minnesota Chapter Family Educational Event
Sunday, October 28th. 11:00am - 1:00pm
University of Minnesota Masonic Children’s Hospital, South Building
Wilf Family Center, on the 2nd/Lobby Floor, room 1 and 2.
2450 Riverside Avenue
Minneapolis, MN 55454
This event will include complimentary lunch and snacks, kids’ activities, and teen social time and activities.
Colleen Correll, MD, of the University of Minnesota Masonic Children’s Hospital will speak about topics of interest to Cure JM families including:
- What is Juvenile Myositis?
- How do the current treatments work? What do the medications do?
- Which labs are important? What do they measure?
- Flares - what causes them? How do you know if a child/teen is flaring?
- Coping strategies for parents to help their children and teens cope with chronic illness
- What new treatments are on the horizon?
- Audience Q&A
Ann Schular, CCLS, from University of Minnesota Masonic Children’s Hospital Child Life Department, will arm families with information on age-appropriate ways to explain a disease to a child/teen, how to get a child/teen to comply with medication-taking, tips & tricks for the family and caregiver, how to help a child/teen cope with treatments and side effect, and answer audience questions.
Cure JM Executive Director Jim Minow will also present an update on the latest JM research and initiatives including current clinical trials and potential new treatments on the horizon.
Please RVSP to Cure JM Minnesota Chapter President Danielle Harris at .
November
Christmas Shop for Cure JM
Saturday, November 3rd
Warsaw, IN
Contact for more information.
2nd Annual Ohio/Western Pennsylvania Chapter Family Day!
Sunday, November 4th, 1:00pm - 4:00pm
Zach Harrison's Office, Simpson Strong-Tie Building
2600 International Street
Columbus, OH 43228
Join your fellow Cure JM Families for a Family Fun Day! This event includes:
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Complimentary lunch and snacks, kids’ activities, and teen social time and activities, and a Sundae Bar for everyone to make their own treats at the end of the day.
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A local physician, will speak about topics of interest to Cure JM families including what is Juvenile Myositis? How do the current treatments work? What do the medications do? Which labs are important? What do they measure? Audience Q&A.
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A specialist from Nationwide Children’s Hospital Child Life Department will present and arm families with information on age-appropriate ways to explain a disease to a child/teen, how to get a child/teen to comply with medication-taking, tips & tricks for the family and caregiver, how to help a child/teen cope with treatments and side effect, and answer audience questions.
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Cure JM Executive Director Jim Minow will also present an update on the latest JM research and initiatives including current clinical trials and potential new treatments on the horizon.
RSVP to Chapter Co-President at .
Philly Chapter Family Education and Fun Day
Saturday, November 17th, 1:00pm - 4:00pm
Children’s Hospital of Philadelphia
(CHoP)
3401 Civic Center Blvd.
Philadelphia, PA 19104
Join your fellow Cure JM Families for a Family Fun Day! This event will include complimentary lunch and snacks, kids’ activities, and tween/teen social time and activities. And more!
Edward M. Behrens, MD, Division Chief, Division of Rheumatology, Children’s Hospital of Philadelphia, will speak about topics of interest to Cure JM families including:
- What is Juvenile Myositis?
- How do the current treatments work?
- What do the medications do?
- Which labs are important?
- What do they measure?
- Audience Q&A.
Cure JM Executive Director Jim Minow will also present an update on the latest JM research and initiatives including current clinical trials and potential new treatments on the horizon. Chapter Presidents Kate and Dave Ettingoff will update on all that is coming up in the next year for the Philly Chapter.
RSVP to chapter President Kate Ettingoff at .
Giving Tuesday! This is the biggest day of the year at Cure JM!
Mark your calendars for Tuesday, November 27th.
This is a virtual day of sharing, comradery, and generosity. This is an online event and everyone can be involved from home. Contact to RSVP or learn more.
Portland City Lights Dinner & Auction
Friday, November 30th, 6:30pm
Melody Ball Room
Portland, OR
CLICK HERE FOR MORE INFORMATION
February, 2019
Austin-San Antonio Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, February 9th, 2019
San Marcos Plaza Park
201 N CM Allen Parkway
San Marcos, TX 78666
CLICK HERE TO REGISTER OR LEARN MORE
Houston Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, February 9th, 2019, 10:00am - 1:00pm
Rob Fleming Park
6055 Creekside Forest Drive,
The Woodlands, TX 77389
CLICK HERE TO REGISTER OR LEARN MORE
Southern California Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, February 23rd, 2019, 10:00am - Noon
Griffith Park
Pettigrew area of Crystal Springs Picnic Area
4730 Crystal Springs Drive
Los Angeles, CA 90027
Registration opens at 9:00am. Walk and festivities from 10:00am - noon.
CLICK HERE TO REGISTER OR LEARN MORE
Northern California Chapter Social and Educational Event
Saturday, February 23rd, 2019, 4:009m - 7:00pm
6541 Bose Lane
San Jose, CA 95120
Join fellow Cure JM Families and Medical Professionals for a social and educational event at the home of Dwight and Maria Powery.
- The event will be catered with a complimentary dinner and dessert buffet.
- Children and teens will be invited to participate in ice-breaker/get-to-know-you games and social time.
- During the event, physicians from UCSF Benioff Children's Hospital will speak about topics of interest to Cure JM families.
- Cure JM Executive Director Jim Minow will also present an update on the latest JM research and initiatives including current clinical trials and potential new treatments on the horizon.
For more information or to RSVP, contact Chapter President Sue Carpenter, . See you there!
March, 2019
Northern Florida Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, March 2nd, 2019
Tom Brown Park
501 Easterwood Drive
Tallahassee, FL 32311
Registration begins at 9:00am. Walk and Festivities 10:00am to Noon.
CLICK HERE TO REGISTER OR LEARN MORE
Central Florida Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, March 2nd, 2019
Gadsden Park
6901 S. MacDill Avenue
Tampa, FL 33611
Registration begins at 9:00am. Walk and Festivities 10:00am to Noon.
CLICK HERE TO REGISTER OR LEARN MORE
April, 2019
2nd Annual Pittsburgh Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, Aprtil 13th, 2019
Schenley Plaza
4100 Forbes Avenue
Pittsburgh, PA
Registration begins at 9:00am. Walk and Festivities 10:00am to Noon.
CLICK HERE TO REGISTER OR LEARN MORE
May, 2019
2nd Annual Northern California Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, May 4th, 2019
Ramona Park
6330 Murdock Way
San Ramon, CA 94582
CLICK HERE TO REGISTER OR LEARN MORE
Philadelphia Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, May 4th, 2019
Independence National Historical Park
143 S 3rd Street,
Philadelphia, PA 19106
Registration opens 4:00pm. Walk Festivities begin 5:00pm. Contact for more information.
CLICK HERE TO REGISTER OR LEARN MORE
June, 2019
2nd Annual Minnesota Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Saturday, June 1st, 2019
University of Minnesota
Coffman Memorial Union
300 Washington Ave SE
Minneapolis, MN 55455
Registration opens 9:00am. Walk Festivities begin 10:00am. Contact for more information.
CLICK HERE TO REGISTER OR GET MORE INFORMATION
Cure JM Foundation 13th National Family Conference and Fundraiser
June 21st - June 23rd
The Hyatt Lodge at McDonald's Campus
2815 Jorie Blvd
Oak Brook, IL 60523 (Greater Chicago Area)
3rd Annual Chicago Walk Strong to Cure JM® Family Fun Event and Fundraising Walk
Sunday, June 23rd
The Hyatt Lodge at McDonald's Campus
2815 Jorie Blvd.
Oak Brook, IL 60523
CLICK HERE TO REGISTER OR LEARN MORE
July, 2019
6th Annual Cowboy Brad Concert for Cure JM
Saturday, July 13, 2019
4:00 PM - Family Picnic and Social Time
7:00 PM - Concert
Hyde Chapel
YMCA of the Rockies
Estes Park, CO
At 4:00pm, families will meet in the shady picnic area at the Hyde Chapel for a picnic, social time, and yard games including gaga ball and washers. The family-friendly concert will be from 7:00pm-8:00pm. Please RSVP to Cure JM volunteer Laurel Krider at .
Would you like to host your own fundraiser to support Cure JM Foundation? Make sure you check out our Fundraising Ideas and Fundraising Guidelines. Email to get started today!
