Cure JM Foundation 2018 National Family Conference Recap

Opening Remarks

A Message from the Executive Director

Recent Developments with Existing Treatments

New and Emerging Treatments for JM

Vamorolone as Potential JM Therapeutic

Update on JM Genetic Discovery Program

CARRA Registry and Biobank

NCATS JM Drug Development Program

Panel Question and Answer

Navigating School & Community

Nutrition and Exercise

Drug Discovery Panel

Treatments and Side Effects

Understanding Labs

Coping for Caregivers

Mothers of Young Kids Supporting Other Mothers

Mothers of Tweens, Teens, and Young Adults Supporting Other Mothers

Teen Q&A for Parents Led by Teens(First Session)

Teen Q&A for Parents Led by Teens(Second Session)

Dinner and Awards Ceremony Part 1

Dinner and Awards Ceremony Part 2

Annual Conference

Executive Director Review

Summary of Scientific Research Posters

Conference Photos

Conference Videos

Research Participation

Kids’ Fun Camp

Teen & Tween Photography Workshop

2nd Annual Walk Strong to Cure JM™ D.C.

Informational Sessions

General Session

General Session Q&A

Drug Discovery & Emerging Treatments

Treatments and Side Effects Panel

Understanding Lab Tests and Other Signs of Flare

Newly Diagnosed Families

Nutrition & Exercise Panel

Skin Disease and Skin Protection Panel (including Calcinosis)

Patient Advocacy: Navigating School and Community

Pediatric to Adult Care Transition Panel

Teen and Child Perspective: A Q&A for Parents Led by Teens

Legacy Giving

Organizing for Local Chapters & Walks

Support and Coping Sessions

Impact of JM on Mental Health and Quality of Life

Coping for Caregivers

Helping Your Kids and Teens Cope

Teens & Young Adults: Support and Self Advocating

Grandparents Session

Mothers Supporting Mothers

The Father Experience

The Sibling Experience

Mindfulness based Stress Reduction

Recognition

Awards

Recaps of Other Conferences

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