Always Home and Uncool:
Kevin McKeever on Dads' Break-Out Session

Cure JM 2013 Annual Conference and Fundraiser Recap

Kevin McKeever

Fathers shared stories about their children’s journeys with Juvenile Myositis at the first-ever “Dads” breakout session at the annual Cure JM conference.

 More than a dozen fathers swapped advice on topics such as how to give methotrexate injections to a squeamish child, how best to store and re-use the yellow chemotherapy medication, and how to deal with their child’s conflicting need to avoid too much sun exposure while still “fitting in” with the school and social scene.

A major focus of the session was staying involved with their child’s medical needs even when not serving as the family’s primary caregiver. These include finding out and utilizing your employer’s policies on family leave, maintaining good communication with doctors, your partner and other JM caregivers and parents. Session co-moderator Kevin McKeever, whose daughter has dealt with JM for more than a decade, also recommended always knowing your child’s current medications and dosages for emergencies.

The key, the dads agreed, is always being able and ready to contribute to an informed discussion on your child’s health and treatment with your family and medical professionals whenever the occasion arises.

Conference Recap Links