Volunteering Speaks Volumes

Are you eager to make a meaningful impact and connect with a community committed to an important cause? The Cure JM Foundation welcomes passionate volunteers like you! Whether you can spare just a few moments or have more time to give, your dedication can greatly advance our mission.

Here are detailed opportunities for you to get involved, all adaptable to your schedule and with no fixed commitment:

  • Digital Media Champion: Amplify our cause and share updates across your social media platforms, harnessing the power of the digital age. Maybe you know an influencer, someone who has a podcast, or you have a huge following -reach out and share your story and mention Cure JM! Follow us on all our platforms: Instagram, Facebook, Twitter, and LinkedIn. Knowledge is power!
  • Creative Fundraising: Organize engaging fundraisers within your social circle, leveraging innovative ideas to garner support. DIY is a great place to start! www.curejm.org/diyfundraising
  • Campaign Ambassador: Participate in our advocacy campaigns to educate and inform others, leveraging online platforms to spread awareness far and wide. Don’t forget to reach out to local radio and television stations to help spread the news!
  • Community Outreach: Distribute flyers and informational materials within your community, utilizing both physical and digital channels.
  • Tell Your Story: Share your personal journey and experiences with us through our storytelling platform www.curejm.org/stories-of-hope. Or share your own story. Create a reel, post a picture, or event write a blog! You could also find a podcast to go on and share your story on as well!
  • Partnership Facilitator: Make connections with businesses for potential partners and sponsors, leveraging your networking skills in the modern business landscape.
  • Virtual Support Helper: Assist with various online administrative tasks or virtual event coordination from the comfort of your own home, utilizing digital tools to streamline operations.
  • Be a Community Voice: Represent Cure JM at local community gatherings, spreading the importance of our rare disease cause.
  • Join Cure JM Events: Attend and promote Cure JM events, to meet others and broaden our impact.
  • Local Chapter Collaborator: Connect with local Chapter Family Outreach specialists and contribute to the work that helps JM kids locally.
  • Council and Advisory Board Member: Join our patient, parent, and grandparent councils, participating in online meetings and sharing valuable insights with the flexibility to engage according to your availability.
  • Remote Clerical Support: Provide crucial administrative support online or via phone, aiding in essential organizational tasks from the convenience of your home.
  • Material Distribution Coordinator: Assist in delivering informational materials to healthcare professionals for new JM patients, facilitating vital connections in the medical community. Better yet, share these resources via your own platform!
  • Peer Support Mentor: Offer guidance and support to individuals through phone or online chat platforms, utilizing provided training to make a meaningful difference in the lives of others.

Your skills and passion can make a real difference. If you have specific talents or ideas, we’d love to hear from you! 

Please reach out to Shannon.Malloy@curejm.org to explore more opportunities. 

At Cure JM, every minute you contribute is a step towards a brighter future for those affected by juvenile myositis. Thank you for considering joining our team of dedicated volunteers – together, we can achieve so much more!

Research Update: misbehaving Mitochondria Linked to Juvenile Dermatomyositis. Dr. Christian Lood

Breakthrough Discovery: Misbehaving Mitochondria Linked to Juvenile Dermatomyositis

The generous support of our community has been instrumental in funding groundbreaking research this year, led by Dr. Christian Lood at the University of Washington and Cure JM’s Center of Excellence at Seattle Children’s Hospital. Dr. Lood’s team has identified calcified mitochondria in the muscle tissue of JDM patients with calcinosis – a finding that sheds new light on understanding JDM

Unveiling the Future of Hope, Malloy and Heaton, September Town Hall 2024

Unveiling the Future of Hope

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.