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The Importance of Exercise in Juvenile Myositis

This presentation features Sue Maillard, a specialist physiotherapist at Great Ormond Street Hospital, London, who explores the importance of different types of exercise in managing juvenile myositis (JM).

With over 30 years of experience in Pediatric Rheumatology Physiotherapy, Sue has a specialist interest in JM and has completed research on the safety of exercise in juvenile dermatomyositis (JDM).

Sue currently leads a physiotherapy team that provides an inpatient rehabilitation program for children and reviews and manages home treatment programs.

Austin Krainz’s Story

Austin Krainz, diagnosed with juvenile dermatomyositis at the age of seven, overcame the challenges of a rare disease with the support of his family and pioneering treatment from Dr. Lauren Pachman. After more than a decade of battling the illness, Austin entered remission, fulfilling his childhood dream of professional racing in Porsche’s GT America series.

Exercise and Juvenile Myositis

In this presentation, Dr. Laura Tasan explains the importance of exercise for JM patients. Since JM children suffer from endurance and fatigue issues, exercise for

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