Tapering Medication

Cure JM hosted a special Town Hall featuring Dr. Kaveh Ardalan, Co-Director of the Duke Children’s Myositis Center, a Cure JM Center of Excellence. The session focused on the critical topic of tapering medications in the treatment of juvenile myositis. Families gained practical insights on managing infusions, flares, and daily medications, and had the opportunity to ask questions in a supportive, community-focused environment. The session offered both education and encouragement for those navigating the complex process of medication tapering.

Austin Krainz’s Story

Austin Krainz, diagnosed with juvenile dermatomyositis at the age of seven, overcame the challenges of a rare disease with the support of his family and pioneering treatment from Dr. Lauren Pachman. After more than a decade of battling the illness, Austin entered remission, fulfilling his childhood dream of professional racing in Porsche’s GT America series.

Town Hall April 2024, IVIG, Tory, Cherwin, Vogel, Alderfer

IVIG – What Parents and Caregivers Need to Know

Hear from a panel of four experts about IVIG, including important tips for a successful IVIG journey.

The panel will discuss a variety of must-know information on successful IVIG treatment days, navigating the system, at-home vs. outpatient options, pre & post-treatment checklists, and more.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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